Rare Disease News

Apply Now: The Hole in the Wall Gang Camp Hosts First-Ever Rare Disease Family Camp

Published March 4, 2016 by NORD

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Apply for the first-ever rare disease summer family camp!

Today is Rare Disease Day®

Published February 29, 2016 by NORD

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On this day, join the 30 million Americans who are making the voice of rare diseases heard. Your participation on Rare Disease Day means more awareness and hope for 1 in …

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Rare Disease Day Video for 2016 Launched

Published February 4, 2016 by NORD

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Watch the global video for Rare Disease Day with your friends, family, and colleagues!

Join the Running for Rare Team!

Published January 18, 2016 by NORD

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Patients, caregivers, and runners: sign up to get involved with the Running for Rare Team!

Register for the 2016 Rare Impact Awards

Published January 5, 2016 by NORD

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Join us in celebrating the rare disease community. Register for the 2016 Rare Impact Awards.

Get Involved in Your State on Rare Disease Day

Published December 17, 2015 by NORD

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On February 29, millions of people worldwide will come together to raise awareness about rare diseases and their impact on patients’ lives. This is our day to be heard, so speak up and tell your elected officials about what it is like to live rare.

Raise Your Voice: Rare Disease Day 2016 is Coming

Published October 12, 2015 by NORD

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Date: February 29, 2016 Global Theme: Patient Voice Global Slogan: Join us in making the voice of rare diseases heard By definition, each rare disease affects a small segment of …

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Rare Disease Day 2016 Theme and Slogan Announced!

Published September 16, 2015 by NORD

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Theme: Patient Voice Slogan: Join us in making the voice of rare diseases heard It’s here! As the official sponsor and host of Rare Disease Day in the U.S., NORD …

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Rare Disease Day 2016 Theme and Slogan Announced

Published September 16, 2015 by NORD

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Theme: Patient Voice Slogan: Join us in making the voice of rare diseases heard As the official sponsor and host of Rare Disease Day in the U.S., NORD is excited …

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Rare Disease Artists’ Work Traveling Globe to Raise Awareness

Published September 8, 2015 by NORD

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The Cystinosis Research Network (CRN), a 501(c)(3) charitable organization and NORD member, created the first-ever “Dream, Achieve, Inspire” art exhibit prepared entirely by patients with cystinosis, a rare, genetic-metabolic disease. Paintings, poems, sculptures, …

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