Published February 19, 2021 by NORD
Sometimes a helping hand is most needed when an unexpected emergency arises. NORD is committed to supporting rare disease patients and families and offers several programs to assist them in times of crisis. NORD’s Hurricane and Natural Disaster Emergency Relief Fund provides financial …
Read morePublished February 18, 2021 by NORD
The National Organization for Rare Disorders (NORD®) is pleased to support California Attorney General Xavier Becerra’s nomination as the next Secretary of the Department of Health and Human Services (HHS). …
Read morePublished February 17, 2021 by NORD
On February 17th, NORD, along with The ALS Association, Muscular Dystrophy Association, and Cystic Fibrosis Foundation, sent a letter to Centers for Disease Control and Prevention (CDC) Director Walensky and …
Read morePublished February 10, 2021 by NORD
In “Pandemic Won’t Stop Rare Disease Day on Feb. 28,” an article by BioNews Service’s Mary Chapman that ran on 2.10 and is being picked up by 25+ of BioNews’ …
Continue reading “NORD Featured in BioNews Service Article on Rare Disease Day Happenings”
Read morePublished February 9, 2021 by NORD
As the saying goes, knowledge is power. It is vital that people directly impacted by the more than 7,000 rare diseases are armed with the knowledge and information they need …
Continue reading “NORD Launches Rare Disease Educational Support Program”
Read morePublished February 2, 2021 by NORD
In its February 2021 issue, PharmaVOICE features NORD in its Rare Disease Showcase column. In “Rare Disease: Tackling the Barriers to Rare Disease Treatment,” NORD’s Undiagnosed Patients Registry and the …
Continue reading “NORD Featured in February 2021 Issue of PharmaVOICE”
Read morePublished January 28, 2021 by NORD
Washington, DC, January 28, 2021— Even with the world acutely aware of public health matters in light of the COVID-19 pandemic, there are millions in the United States and around the globe …
Read morePublished January 27, 2021 by NORD
Washington, DC, January 27, 2021—Today, the National Organization for Rare Disorders (NORD®) and its Rare Action Network (RAN™) published the 6th Edition of the State Report Card, the annual report rating each state and Washington, DC on the …
Read morePublished January 26, 2021 by NORD
Washington, DC, January 26, 2021—In an effort to provide clear, useful, authoritative information to rare disease patients and caregivers on the COVID-19 vaccines, on January 15 the National Organization for Rare Disorders (NORD®), along with The ALS Association, Cystic Fibrosis Foundation and Muscular …
Read morePublished January 22, 2021 by NORD
The National Organization for Rare Disorders (NORD®) looks forward to working with Dr. Janet Woodcock as Acting Commissioner of the US Food and Drug Administration (FDA). Dr. Woodcock has consistently demonstrated …
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