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Feb. 9, 2021

TOPIC: Featured News, Patients & Members, Advocacy

NORD Launches Rare Disease Educational Support Program

Posted by Rebecca Aune

As the saying goes, knowledge is power. It is vital that people directly impacted by the more than 7,000 rare diseases are armed with the knowledge and information they need to live their best lives while managing their rare condition. One of the pillars of NORD’s mission is educating patients and caregivers to advocate for themselves so they can gain access to accurate diagnoses, clinical research, quality care and treatments. To help support rare disease patients and caregivers in attaining the tools and education they need, NORD is proud to announce the opening of our Rare Disease Educational Support Program.

Thanks to generous support from Horizon Therapeutics, this new program offers patients, families and caregivers financial assistance to attend rare disease educational meetings and conferences. The initiative provides reimbursement for registration costs for rare disease-specific programs, as well as workshops, nutrition classes, and conferences offering content related to rare diseases in general – all of which support patients’ health and wellbeing. In addition to assisting with registration fees, the Rare Disease Educational Support Program offers limited financial assistance to patients and caregivers for travel and lodging costs.

The Rare Disease Educational Support Program joins NORD’s robust roster of patient assistance offerings, aimed at supporting rare disease patients, families and caregivers. We look forward to helping patients and families participate in a broad spectrum of rare educational programs. For more information and to apply, please contact: [email protected] or 860.556.2208.