Published August 12, 2020 by NORD
#NORDinthenews NORD is mentioned as an information source in “10 Rare Autoimmune Diseases That Don’t Get Enough Attention,” an article appearing in Parade.com’s “Healthy Now” column today. Parade.com is the …
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Read morePublished July 31, 2020 by NORD
At the head of the herd is… Seth Rotberg, Co-Founder, Our Odyssey Seth most frequently checks his… Twitter or Instagram accounts Seth advocates for… Young adults between the ages of …
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Read morePublished July 23, 2020 by NORD
Washington, DC, July 23, 2020—In response to the unprecedented challenges rare disease nonprofit organizations are currently facing, the National Organization for Rare Disorders (NORD®) today announced nineteen seed grant recipients of its COVID-19 Rapid Response Leadership Series program. The awards will assist patient …
Read morePublished July 17, 2020 by NORD
At the head of the herd is… Taylor Kane, Founder and President, Remember the Girls Taylor advocates for those living as… Carriers of all X-linked diseases Taylor is located in… …
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Read morePublished July 16, 2020 by NORD
Today, the Chan Zuckerberg Initiative (CZI) announced $1.3 million in funding to support the global rare disease community through two distinct grants to NORD and EURORDIS-Rare Diseases Europe. These grants …
Read morePublished July 6, 2020 by NORD
During the pandemic, many rare disease patients have been diligent about staying home as social distancing continues to be critical to minimize the spread of the coronavirus; as a result, …
Continue reading “The NORD Policy Team Wants to Hear About Your COVID-19 Telehealth Experience”
Read morePublished June 26, 2020 by NORD
NORD is deeply concerned about the “Promising Pathway Act” recently introduced in both the Senate and the House. Contrary to the stated goal of giving patients with serious and life-threatening …
Continue reading “NORD Issues Statement on Recently Introduced “Promising Pathway Act””
Read morePublished June 24, 2020 by NORD
A Note from NORD: In May, NORD was approached by the Oncology Center of Excellence (OCE) at the US Food and Drug Administration (FDA) to collaborate on a new initiative …
Read morePublished June 22, 2020 by NORD
#NORDintheNews Founded in 1993 by brothers Tom and David Gardner, The Motley Fool helps millions of people attain financial freedom through their website, podcasts, books, newspaper column, radio show, and …
Continue reading “The Motley Fool Chooses NORD as One of Three Nonprofits Worthy of Donations”
Read morePublished June 22, 2020 by NORD
Washington, DC, June 22, 2020 – The National Organization for Rare Disorders® (NORD), the leading independent nonprofit organization representing over 25 million Americans living with rare diseases, today announced the …
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