Published May 6, 2026 by NORD
Advancing Innovation in Rare Disease Research At NORD’s 2nd Annual Rare Disease Scientific Symposium, the central question was not whether rare disease innovation is possible, but how to make it …
Continue reading “2026 Rare Disease Scientific Symposium: Event Recap and Recordings”
Read morePublished March 24, 2026 by NORD
WASHINGTON, D.C. — March 24, 2026 — The National Organization for Rare Disorders (NORD®) today announced the appointments of Michael J. Beard as Vice President of Federal and Global Public …
Read morePublished March 12, 2026 by NORD
NORWELL, Mass., and MIAMI, Fla. (March 12, 2026) – The National Organization for Rare Disorders (NORD®) and OpenEvidence today announced a new partnership to expand access to trusted, expert-reviewed rare …
Read morePublished February 24, 2026 by NORD
NORD is encouraged by efforts to strengthen and clarify regulatory tools that advance rare disease treatments. For conditions with extremely small patient populations, where traditional clinical trials are difficult to …
Read morePublished February 23, 2026 by NORD
Nationwide initiative encourages health-care providers to boost rare-disease knowledge and early diagnosis BOSTON and NORWELL, Mass., FEB 23, 2026 – In recognition of Rare Disease Day, the National Organization for Rare Disorders (NORD®) …
Read morePublished February 9, 2026 by NORD
Annual state report card highlights progress and persistent gaps in access to care for 30 million Americans WASHINGTON, D.C., Feb. 9, 2026 — Access to care for Americans living with rare diseases …
Read morePublished February 5, 2026 by NORD
Leaders across research, clinical care, industry, and patient advocacy convene to accelerate rare disease breakthroughs from discovery to real-world patient impact Norwell, Ma., Feb. 5, 2026 — The National Organization …
Read morePublished January 6, 2026 by NORD
Partnership focuses on delivering high-quality medical education to improve rare disease patient outcomes BOSTON AND WASHINGTON, D.C., January 6, 2026 – Medlive and the National Organization for Rare Disorders® are …
Continue reading “NORD Extends Exclusive CME Partnership with Medlive”
Read morePublished December 18, 2025 by NORD
The Senate’s failure to advance the Give Kids a Chance Act through unanimous consent is deeply disappointing. For more than a year, thousands of rare disease advocates have engaged lawmakers …
Read morePublished December 16, 2025 by NORD
The National Organization for Rare Disorders (NORD) applauds the Department of Health and Human Services (HHS) for adding metachromatic leukodystrophy (MLD) and Duchenne muscular dystrophy (DMD) to the Recommended Uniform …
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