Published May 1, 2024 by NORD
Published April 22, 2024 by NORD
The National Organization for Rare Disorders (NORD) will honor a distinguished group of individuals and industry leaders for their contributions to help improve the lives of more than 30 million …
Read morePublished March 6, 2024 by NORD
NORD’s State Report Card grades states on policies that benefit or jeopardize health care coverage, access, and affordability for people living with rare diseases The National Organization for Rare Disorders …
Read morePublished February 28, 2024 by NORD
By Heidi Ross and Karin Hoelzer What needs to be done to better support rare disease patients, and what is the value of the prescription drugs that treat rare diseases? …
Read morePublished January 25, 2024 by NORD
Jonathan Kowalske, rare disease Dad and co-founder of Milwaukee’s Component Brewing Company, has created a national campaign in partnership with the National Organization for Rare Disorders (NORD) to raise awareness and …
Continue reading “Guest Blog: Why I Created Zebra Hop”
Read morePublished December 11, 2023 by NORD
Read this page in English A lo largo de 2023, NORD organizó una serie de sesiones de escucha comunitaria presenciales y virtuales para pacientes latinos con enfermedades raras y para …
Continue reading “Presentamos un nuevo informe sobre los latinos y las enfermedades raras”
Read morePublished October 16, 2023 by NORD
Series available in English and Spanish – Created in partnership with the FDA and Critical Path Institute Today, the National Organization for Rare Disorders (NORD) launched a new education series …
Read morePublished September 15, 2023 by NORD
The announcement by our friend and fellow rare advocate Yann Le Cam that he will step down in March 2024 from the role of CEO of EURORDIS provides an opportunity …
Continue reading “Statement from NORD CEO on Announcement by Yann Le Cam”
Read morePublished May 12, 2023 by NORD
On this Mother’s Day, NORD would like to recognize the rare disease “Mom” who 40 years ago, brought us all together to where we are today. Abbey Meyers is the …
Continue reading “Recognizing Abbey Meyers, NORD Founder and Mother of a Movement”
Read morePublished May 3, 2023 by NORD
More than Half of U.S. States Now Solicit Input of State Rare Disease Advisory Councils to Inform Local Health Policies May 3, 2023, Annapolis, MD – Today, patients and families in …
Read more
Your gift today fuels progress in the lab, in clinics, on Capitol Hill and for rare families who can’t wait another year for answers.
Please complete this form to access the requested resource.