Published August 14, 2019 by NORD
We’re delighted to announce that Acting FDA Commissioner, Norman E. “Ned” Sharpless will deliver the keynote address at this year’s Rare Diseases & Orphan Products Breakthrough Summit. Sharpless, a physician and scientist, became …
Continue reading “FDA Acting Commissioner to Deliver NORD Rare Summit Keynote”
Read morePublished August 7, 2019 by NORD
The collaborative project between the organizations will kick off at a launch meeting in September and will aim to reduce barriers for the development of new treatments and cures …
Continue reading “FUNDED BY FDA, C-PATH and NORD TO LAUNCH RARE DISEASE DATA ANALYTICS PLATFORM”
Read morePublished July 31, 2019 by NORD
Washington, DC, July 31, 2019—The National Organization for Rare Disorders (NORD)®, the leading independent nonprofit organization representing the over 25 million Americans with rare diseases, has announced the Patient/Caregiver Opening …
Read morePublished July 19, 2019 by NORD
Washington, DC, July 19, 2019—The National Organization for Rare Disorders (NORD)®, the leading independent nonprofit organization representing the over 25 million Americans with rare diseases, announces the appointment of four …
Continue reading “NORD Announces Four New Board Members”
Read morePublished July 9, 2019 by NORD
The National Organization for Rare Disorders (NORD)Ⓡ, the leading independent nonprofit organization representing the 25-30 million Americans living with rare diseases, has added a new video to the NORD Rare …
Continue reading “New Video on PTLD Added to NORD Rare Disease Video Library”
Read morePublished July 2, 2019 by NORD
The time is now…register today!
Read morePublished July 1, 2019 by NORD
NORD’s Hurricane Emergency Relief Fund provides limited financial assistance to those with a rare disease who are victims of natural disasters. Emergency relief funds may be requested once per household/per …
Continue reading “Help for rare disease patients impacted by Hurricane Dorian”
Read morePublished June 25, 2019 by NORD
Washington, DC, June 25, 2019 – The National Organization for Rare Disorders® (NORD), the leading independent nonprofit organization representing the 25-30 million Americans living with rare diseases, has announced ten …
Continue reading “NORD Awards Ten New Grants in Eight Disease States for Rare Disease Research”
Read morePublished June 19, 2019 by NORD
New video library launched with funding from Incyte Washington, DC, June 19, 2019–The National Organization for Rare Disorders (NORD)Ⓡ, the leading independent nonprofit organization representing the 25-30 million Americans living …
Continue reading “The NORD Rare Disease Video Library Offers New Educational Resources”
Read morePublished June 18, 2019 by NORD
New program by the trusted voice and leader in the rare disease community aims to increase clinician preparedness and improve the care of patients living with rare diseases BOSTON, …
Continue reading “NORD Launches Digital Education Initiative with PlatformQ Health”
Read more
Your gift today fuels progress in the lab, in clinics, on Capitol Hill and for rare families who can’t wait another year for answers.
Please complete this form to access the requested resource.