Published July 19, 2019 by NORD
Washington, DC, July 19, 2019—The National Organization for Rare Disorders (NORD)®, the leading independent nonprofit organization representing the over 25 million Americans with rare diseases, announces the appointment of four …
Continue reading “NORD Announces Four New Board Members”
Read morePublished July 9, 2019 by NORD
The National Organization for Rare Disorders (NORD)Ⓡ, the leading independent nonprofit organization representing the 25-30 million Americans living with rare diseases, has added a new video to the NORD Rare …
Continue reading “New Video on PTLD Added to NORD Rare Disease Video Library”
Read morePublished July 2, 2019 by NORD
The time is now…register today!
Read morePublished July 1, 2019 by NORD
NORD’s Hurricane Emergency Relief Fund provides limited financial assistance to those with a rare disease who are victims of natural disasters. Emergency relief funds may be requested once per household/per …
Continue reading “Help for rare disease patients impacted by Hurricane Dorian”
Read morePublished June 25, 2019 by NORD
Washington, DC, June 25, 2019 – The National Organization for Rare Disorders® (NORD), the leading independent nonprofit organization representing the 25-30 million Americans living with rare diseases, has announced ten …
Continue reading “NORD Awards Ten New Grants in Eight Disease States for Rare Disease Research”
Read morePublished June 19, 2019 by NORD
New video library launched with funding from Incyte Washington, DC, June 19, 2019–The National Organization for Rare Disorders (NORD)Ⓡ, the leading independent nonprofit organization representing the 25-30 million Americans living …
Continue reading “The NORD Rare Disease Video Library Offers New Educational Resources”
Read morePublished June 18, 2019 by NORD
New program by the trusted voice and leader in the rare disease community aims to increase clinician preparedness and improve the care of patients living with rare diseases BOSTON, …
Continue reading “NORD Launches Digital Education Initiative with PlatformQ Health”
Read morePublished June 17, 2019 by NORD
NORD’s Living Rare, Living Stronger Patient & Family Forum is coming us this weekend on June 21-23 in Houston, TX. For those not joining us in-person, please join us online! …
Continue reading “Catch Living Rare Forum Plenaries and The Rare Impact Awards on Facebook Live!”
Read morePublished June 3, 2019 by NORD
This collection of real-world insights is informed by scientifically validated, patient-reported data collected by NORD’s registry community.
Read morePublished May 21, 2019 by NORD
This year’s Rare Impact Awards are going to be spectacular! From star power to the heroes of the rare disease community, it is going to be a night to remember. Every …
Continue reading “Exciting Rare Impact Awards Announcements”
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