Published June 15, 2018 by NORD
Washington, D.C., June 15, 2018—On Wednesday, staff from the National Organization for Rare Disorders (NORD) met with Health and Human Services (HHS) Secretary Alex Azar to discuss the needs of …
Continue reading “NORD Meets with HHS Secretary Azar to Discuss Needs of Rare Disease Patients”
Read morePublished June 4, 2018 by NORD
Washington, D.C., June, 4, 2018 —The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement on …
Read morePublished May 29, 2018 by NORD
Washington, D.C., May 30, 2018—The National Organization for Rare Disorders (NORD) today launched RareInsights™, its new initiative to expand public knowledge of rare diseases and translate that knowledge into real-world …
Read morePublished May 24, 2018 by NORD
All U.S. and international researchers are encouraged to apply by the initial application deadline of July 16, 2018
Read morePublished May 22, 2018 by NORD
Washington, D.C., May 22, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement following …
Continue reading “NORD Issues Statement Regarding House Passage of the Right to Try Act (S.204)”
Read morePublished May 21, 2018 by NORD
We are looking forward to bringing all stakeholders in rare diseases together once again for our annual Rare Diseases and Orphan Products Breakthrough Summit. We hope to see you there! …
Continue reading “Save the Date for NORD’s 2018 Rare Summit”
Read morePublished May 15, 2018 by NORD
The National Organization for Rare Disorders (NORD) today issued the following statement in response to American Patients First, the Trump Administration Blueprint to Lower Drug Prices and Reduce Out-of-Pocket Costs: …
Read morePublished May 10, 2018 by NORD
Join us on May 17 via Facebook Live!
Read morePublished May 7, 2018 by NORD
2018 is a big year for the rare disease community – NORD is celebrating its 35th anniversary. For the past 35 years, NORD has taken pride in being the rare …
Continue reading “NORD 35th Anniversary Blog Series: The Early Years (1980s)”
Read morePublished May 4, 2018 by NORD
For 35 years, NORD has been leading the fight to improve the lives of patients and families with rare diseases. We do this by supporting patients and organizations, accelerating research, …
Continue reading “35 Ways and Growing: NORD’s Service to the Rare Disease Community”
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