Published October 11, 2018 by NORD
NORD’s Director of State Policy Tim Boyd participated in a press briefing on copay accumulators yesterday, which was followed by the issuance of the following press release that includes links …
Read morePublished October 9, 2018 by NORD
Yesterday, a NORD Member Organization and IAMRARE™ Registry Client, Congenital Hyperinsulinism International (CHI), officially launched their patient registry, HI Global Registry. NORD’s IAMRARE Registry Program was built to address the …
Continue reading “NORD IAMRARE HI Global Registry Launched”
Read morePublished October 3, 2018 by NORD
Listen to recent comments from Janet Woodcock, Director CDER, FDA on NORD and the importance of natural history registries for rare disorders.
Read morePublished September 25, 2018 by NORD
Washington, D.C., September 25, 2018 – The National Organization for Rare Disorders (NORD) announced today it is enhancing its Rare Disease Database which serves as a valuable source of information …
Read morePublished September 20, 2018 by NORD
Make your choice from this menu of thought-provoking, informative Lunch & Learn sessions available for attendees of the 2018 NORD Rare Summit. With only 25 days to go, be sure …
Continue reading “Chat, Chew, and Be Challenged! Lunchtime Learning at the NORD Rare Summit”
Read morePublished September 12, 2018 by NORD
1. Raves About the Rare Summit “Inspiring and Informative. Brought me to the realization that though I may feel my ‘disease’ is the only one – there are many who …
Continue reading “Three Big Reasons Not to Miss the 2018 NORD Rare Summit”
Read morePublished September 11, 2018 by NORD
Washington, D.C., September 11, 2018—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, has announced the addition of ten …
Read morePublished September 6, 2018 by NORD
2018 is a big year for the rare disease community – NORD is celebrating its 35th anniversary. For the past 35 years, NORD has taken pride in being the rare …
Continue reading “NORD 35th Anniversary Blog Series: 2010-2018 (Present)”
Read morePublished September 5, 2018 by NORD
One of the unique aspects of the 2018 NORD Rare Diseases & Orphan Products Breakthrough Summit is its theme, “A New Era of Patient-Focused Innovation,” which we will be examining from a …
Continue reading “Patient/Caregiver Opening Address Announced for NORD Rare Summit”
Read morePublished August 29, 2018 by NORD
Washington, D.C., August 29, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, has announced some of …
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