Published March 27, 2018 by NORD
Parsippany – March 26, 2018 – The 2018 Rare Neurological Disease Special Report has been published by Neurology Reviews in collaboration with NORD, the National Organization for Rare Disorders, the leading independent nonprofit representing …
Read morePublished February 28, 2018 by NORD
Listening Sessions to Enable Sharing Rare Disease Experiences with FDA Review Divisions Washington, D.C., February 28, 2018—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the …
Continue reading “NORD to Collaborate with FDA on Pilot Patient Engagement Activity”
Read morePublished February 8, 2018 by NORD
The National Organization for Rare Disorders (NORD), the leading independent, nonprofit organization committed to the identification, treatment, and cure of rare disorders, has announced the availability of three research grants …
Continue reading “Current Funding Opportunity: NORD Research Grants for Rare Diseases”
Read morePublished February 6, 2018 by NORD
Washington, D.C., February 6, 2018—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, today joined 37 patient and provider organizations in …
Continue reading “NORD Sends Letter to House of Representatives on Right to Try Act”
Read morePublished January 26, 2018 by NORD
Washington, D.C., January 26, 2018—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement on the confirmation by the …
Continue reading “NORD Issues Statement on Confirmation of New Secretary of HHS, Alex Azar”
Read morePublished January 18, 2018 by NORD
During the 2017 Rare Diseases & Orphan Products Breakthrough Summit over 700 individuals from the rare disease community gathered to advance the dialogue in rare diseases. NORD was pleased to …
Continue reading “Early Diagnosis: Perspectives from NORD Student Chapter Leader, Harjot Randhawa”
Read morePublished December 20, 2017 by NORD
Washington, D.C., December 20, 2017 – The National Organization for Rare Disorders (NORD), the leading independent, nonprofit organization committed to the identification, treatment, and cure of rare disorders, has announced …
Continue reading “NORD Awards Five New Grants for Rare Disease Research”
Read morePublished November 30, 2017 by NORD
Washington DC, Thursday, November 30 — The National Organization for Rare Disorders (NORD) has published new physician guides to promote diagnosis and treatment for patients with three rare medical conditions: hepatocellular …
Continue reading “NORD Publishes Information for Physicians and Patients on Three Rare Diseases”
Read morePublished November 13, 2017 by NORD
Washington, D.C., November 13, 2017—As part of its ongoing series to promote awareness and education regarding rare diseases, the National Organization for Rare Disorders (NORD) has published a report on Li-Fraumeni …
Continue reading “NORD Publishes New Educational Resource on Li-Fraumeni Syndrome”
Read morePublished November 10, 2017 by NORD
Washington, D.C., November 10, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response …
Read more
Your gift today fuels progress in the lab, in clinics, on Capitol Hill and for rare families who can’t wait another year for answers.
Please complete this form to access the requested resource.