Published September 10, 2019 by NORD
NORD’s Educational Initiatives team spoke with Jaime Tan, Central Michigan University medical student and NORD Students for Rare Chapter Leader. In this interview, Jaime talks about how he came to …
Continue reading “Students for Rare Featured Student: Jaime Tan”
Read morePublished July 9, 2019 by NORD
The National Organization for Rare Disorders (NORD)Ⓡ, the leading independent nonprofit organization representing the 25-30 million Americans living with rare diseases, has added a new video to the NORD Rare …
Continue reading “New Video on PTLD Added to NORD Rare Disease Video Library”
Read morePublished July 2, 2019 by NORD
The time is now…register today!
Read morePublished June 19, 2019 by NORD
New video library launched with funding from Incyte Washington, DC, June 19, 2019–The National Organization for Rare Disorders (NORD)Ⓡ, the leading independent nonprofit organization representing the 25-30 million Americans living …
Continue reading “The NORD Rare Disease Video Library Offers New Educational Resources”
Read morePublished June 18, 2019 by NORD
New program by the trusted voice and leader in the rare disease community aims to increase clinician preparedness and improve the care of patients living with rare diseases BOSTON, …
Continue reading “NORD Launches Digital Education Initiative with PlatformQ Health”
Read morePublished May 7, 2019 by NORD
NORD developed key drug pricing principles with the needs of the rare disease community in mind.
Read morePublished April 17, 2019 by NORD
This 5th annual issue is the largest to date and focuses on the progress in medical science, genetics, and neuromuscular diseases Parsippany, NJ – April 16, 2019 – Frontline Medical Communications (FMC) …
Continue reading “The 2019 Rare Neurological Disease Special Report Is Now Available”
Read morePublished April 16, 2019 by NORD
NORD has published a report in its Rare Disease Database on primary distal renal tubular acidosis (dRTA), a rare genetic disorder that affects the ability of the kidneys to remove …
Continue reading “NORD Publishes Report on Primary Distal Renal Tubular Acidosis”
Read morePublished November 29, 2018 by NORD
Washington, DC, November 29, 2018–As part of its ongoing series to promote awareness and education regarding rare diseases, the National Organization for Rare Disorders (NORD) has published a report on …
Continue reading “NORD Publishes Report on Post-Transplant Lymphoproliferative Disease”
Read morePublished November 9, 2018 by NORD
NORD’s Educational Initiatives team spoke with Jennifer Shoskes, a Northeastern University graduate student and NORD Student Chapter Leader. In this interview, Jennifer talks about her inspiration for starting a NORD …
Continue reading “Featured Student: Jennifer Shoskes”
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