NORD Releases Principles for Assessing Proposals Designed to Lower the Cost of Prescription Drugs in the United States
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NORD developed key drug pricing principles with the needs of the rare disease community in mind.
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Published May 7, 2019 by NORD
NORD developed key drug pricing principles with the needs of the rare disease community in mind.
Read morePublished April 17, 2019 by NORD
This 5th annual issue is the largest to date and focuses on the progress in medical science, genetics, and neuromuscular diseases Parsippany, NJ – April 16, 2019 – Frontline Medical Communications (FMC) …
Continue reading “The 2019 Rare Neurological Disease Special Report Is Now Available”
Read morePublished April 16, 2019 by NORD
NORD has published a report in its Rare Disease Database on primary distal renal tubular acidosis (dRTA), a rare genetic disorder that affects the ability of the kidneys to remove …
Continue reading “NORD Publishes Report on Primary Distal Renal Tubular Acidosis”
Read morePublished November 29, 2018 by NORD
Washington, DC, November 29, 2018–As part of its ongoing series to promote awareness and education regarding rare diseases, the National Organization for Rare Disorders (NORD) has published a report on …
Continue reading “NORD Publishes Report on Post-Transplant Lymphoproliferative Disease”
Read morePublished November 9, 2018 by NORD
NORD’s Educational Initiatives team spoke with Jennifer Shoskes, a Northeastern University graduate student and NORD Student Chapter Leader. In this interview, Jennifer talks about her inspiration for starting a NORD …
Continue reading “Featured Student: Jennifer Shoskes”
Read morePublished October 8, 2018 by NORD
NORD has published a Request for Proposals inviting accredited CME providers to respond with proposals by Nov. 16th.
Read morePublished September 12, 2018 by NORD
1. Raves About the Rare Summit “Inspiring and Informative. Brought me to the realization that though I may feel my ‘disease’ is the only one – there are many who …
Continue reading “Three Big Reasons Not to Miss the 2018 NORD Rare Summit”
Read morePublished August 29, 2018 by NORD
Washington, D.C., August 29, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, has announced some of …
Read morePublished July 19, 2018 by NORD
Watch the latest release from NORD’s RareEDU™ on gene therapy.
Read morePublished July 11, 2018 by NORD
Dr. Scott Gottlieb was sworn in as the 23rd Commissioner of Food and Drug Administration in 2017, and provided a keynote speech at the NORD Rare Summit shortly thereafter. 2018 …
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