Published September 24, 2020 by NORD
For Immediate Release Major Groups Representing Millions of Patients Release Telehealth Principles September 24, 2020 – A coalition of organizations representing millions of patients who live with serious, acute, and chronic …
Read morePublished September 16, 2020 by NORD
Washington, DC, September 16, 2020–The National Organization for Rare Disorders (NORD®) has announced the second annual Rare Cancer Day, taking place September 30, 2020. Spearheaded by the NORD Rare Cancer Coalition®, which is composed of 27 rare cancer-specific member organizations, Rare Cancer Day is observed to bring …
Continue reading “Rare Cancer Day 2020 To Take Place on September 30”
Read morePublished September 10, 2020 by NORD
Washington, DC, September 10, 2020–At a time when it is vitally important for the rare disease community to come together, the National Organization for Rare Disorders (NORD®) has announced a program of …
Read morePublished August 12, 2020 by NORD
#NORDinthenews NORD is mentioned as an information source in “10 Rare Autoimmune Diseases That Don’t Get Enough Attention,” an article appearing in Parade.com’s “Healthy Now” column today. Parade.com is the …
Continue reading “NORD Included in Parade.com Article on Rare Autoimmune Diseases”
Read morePublished July 23, 2020 by NORD
Washington, DC, July 23, 2020—In response to the unprecedented challenges rare disease nonprofit organizations are currently facing, the National Organization for Rare Disorders (NORD®) today announced nineteen seed grant recipients of its COVID-19 Rapid Response Leadership Series program. The awards will assist patient …
Read morePublished July 16, 2020 by NORD
Today, the Chan Zuckerberg Initiative (CZI) announced $1.3 million in funding to support the global rare disease community through two distinct grants to NORD and EURORDIS-Rare Diseases Europe. These grants …
Read morePublished June 22, 2020 by NORD
#NORDintheNews Founded in 1993 by brothers Tom and David Gardner, The Motley Fool helps millions of people attain financial freedom through their website, podcasts, books, newspaper column, radio show, and …
Continue reading “The Motley Fool Chooses NORD as One of Three Nonprofits Worthy of Donations”
Read morePublished June 22, 2020 by NORD
Washington, DC, June 22, 2020 – The National Organization for Rare Disorders® (NORD), the leading independent nonprofit organization representing over 25 million Americans living with rare diseases, today announced the …
Read morePublished May 21, 2020 by NORD
Washington, DC, May 21, 2020—The National Organization for Rare Disorders (NORD®) today launched the COVID-19 Rapid Response Leadership Series, a program providing resources to support rare disease nonprofit groups in …
Read morePublished May 19, 2020 by NORD
Washington, DC, May 19, 2020—The National Organization for Rare Disorders (NORD®) has announced new awards through its Rare Disease Research Grant Program, which provides funding to qualified researchers for translational …
Continue reading “NORD Awards Eleven New Grants in Eight Disease States for Rare Disease Research”
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