Published February 5, 2026 by NORD
Leaders across research, clinical care, industry, and patient advocacy convene to accelerate rare disease breakthroughs from discovery to real-world patient impact Norwell, Ma., Feb. 5, 2026 — The National Organization …
Read morePublished January 6, 2026 by NORD
Partnership focuses on delivering high-quality medical education to improve rare disease patient outcomes BOSTON AND WASHINGTON, D.C., January 6, 2026 – Medlive and the National Organization for Rare Disorders® are …
Continue reading “NORD Extends Exclusive CME Partnership with Medlive”
Read morePublished December 8, 2025 by NORD
NORWELL, Mass., Dec. 8, 2025 — The National Organization for Rare Disorders (NORD®), a leading rare disease patient advocacy organization, today announced the appointment of Kim Isenberg, a retired industry …
Read morePublished December 4, 2025 by NORD
NORD report shows 63 FDA vouchers driving breakthroughs for 47 rare pediatric diseases, 43 with no prior treatments — unprecedented progress for children left behind WASHINGTON, Dec. 4, 2025 — …
Read morePublished December 3, 2025 by NORD
NORD’s growing network, now 46 institutions strong, represents a coordinated nationwide effort to strengthen rare disease care and research collaboration NORWELL, Mass., Dec. 3, 2025 — The National Organization for …
Read morePublished November 14, 2025 by NORD
Implementation of two new patient registries on the IAMRARE® platform funded by RDCA-DAP® DANBURY, Conn., Nov. 14, 2025 — The National Organization for Rare Disorders (NORD®), a leading national nonprofit …
Continue reading “NORD Launches New RFP for Patient Registries”
Read morePublished November 6, 2025 by NORD
National Organization for Rare Disorders (NORD®) Brings Together 100+ Wis. Families for a Day of Hope, Learning, and Community During National Family Caregivers Month WHAT: As National Family Caregivers Month shines a light on those who care for loved ones, the …
Read morePublished October 28, 2025 by NORD
On-the-go app helps patients and caregivers share health information to support rare disease research The National Organization for Rare Disorders (NORD®), a leading national nonprofit serving more than 30 million …
Continue reading “NORD Unveils IAMRARE Mobile App Companion to IAMRARE Registry Platform”
Read morePublished October 21, 2025 by NORD
Oct. 21, 2025 — U.S. Senator Amy Klobuchar joined the National Organization for Rare Disorders (NORD®) Rare Diseases & Orphan Products Breakthrough Summit® today, offering encouragement to an audience of …
Continue reading “Senator Amy Klobuchar Joins Rare Disease Community at National Gathering”
Read morePublished September 8, 2025 by NORD
Over $80,000 in Funding Supports Innovative Studies Targeting Two Critically Underserved Conditions The National Organization for Rare Disorders (NORD®) has awarded more than $82,000 in seed funding to two international …
Continue reading “NORD Awards 2025 Seed Grants to Advance Breakthroughs in Rare Disease Research”
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