Published December 3, 2025 by NORD
NORD’s growing network, now 46 institutions strong, represents a coordinated nationwide effort to strengthen rare disease care and research collaboration NORWELL, Mass., Dec. 3, 2025 — The National Organization for …
Read morePublished November 14, 2025 by NORD
Implementation of two new patient registries on the IAMRARE® platform funded by RDCA-DAP® DANBURY, Conn., Nov. 14, 2025 — The National Organization for Rare Disorders (NORD®), a leading national nonprofit …
Continue reading “NORD Launches New RFP for Patient Registries”
Read morePublished November 6, 2025 by NORD
National Organization for Rare Disorders (NORD®) Brings Together 100+ Wis. Families for a Day of Hope, Learning, and Community During National Family Caregivers Month WHAT: As National Family Caregivers Month shines a light on those who care for loved ones, the …
Read morePublished October 28, 2025 by NORD
On-the-go app helps patients and caregivers share health information to support rare disease research The National Organization for Rare Disorders (NORD®), a leading national nonprofit serving more than 30 million …
Continue reading “NORD Unveils IAMRARE Mobile App Companion to IAMRARE Registry Platform”
Read morePublished October 21, 2025 by NORD
Oct. 21, 2025 — U.S. Senator Amy Klobuchar joined the National Organization for Rare Disorders (NORD®) Rare Diseases & Orphan Products Breakthrough Summit® today, offering encouragement to an audience of …
Continue reading “Senator Amy Klobuchar Joins Rare Disease Community at National Gathering”
Read morePublished September 8, 2025 by NORD
Over $80,000 in Funding Supports Innovative Studies Targeting Two Critically Underserved Conditions The National Organization for Rare Disorders (NORD®) has awarded more than $82,000 in seed funding to two international …
Continue reading “NORD Awards 2025 Seed Grants to Advance Breakthroughs in Rare Disease Research”
Read morePublished August 25, 2025 by NORD
“From Records to Research” empowers patients, caregivers to take control of their health The National Organization for Rare Disorders (NORD®), the leading national nonprofit serving more than 30 million Americans …
Continue reading “NORD Unveils New, Free Data Literacy Course”
Read morePublished August 21, 2025 by NORD
WASHINGTON, D.C., Aug. 21, 2025 — The future of rare disease care and innovation will take center stage in the nation’s capital this fall. The National Organization for Rare Disorders …
Read morePublished August 13, 2025 by NORD
The National Organization for Rare Disorders (NORD®), the leading national nonprofit serving more than 30 million Americans with rare diseases, announced five new requests for proposals (RFPs) totaling $245,000 in seed …
Read morePublished July 22, 2025 by NORD
QUINCY, Mass., July 22, 2025—The National Organization for Rare Disorders (NORD®), a leading rare disease nonprofit patient advocacy organization, welcomes two new members to the Board of Directors: Steven Mah, …
Continue reading “National Organization for Rare Disorders Announces New Board Members”
Read more
Your gift today fuels progress in the lab, in clinics, on Capitol Hill and for rare families who can’t wait another year for answers.
Please complete this form to access the requested resource.