Published September 21, 2022 by NORD
Since 1989, NORD has awarded over 200 grants totaling over $9 million in approved funding September 21, 2022, Washington, DC – Today, the National Organization for Rare Disorders (NORD®) announced …
Continue reading “NORD Opens Applications for Three New Rare Disease Research Grants”
Read morePublished September 15, 2022 by NORD
C-Path, NORD and FDA hosted an annual workshop September 13-14 to spotlight the impact of their innovative data and analytics platform on rare disease drug development TUCSON, Ariz. and WASHINGTON, …
Read morePublished August 25, 2022 by NORD
C-Path, NORD and FDA to host annual workshop September 13-14 to highlight the impact of their innovative data and analytics platform on rare disease drug development TUCSON, Ariz. and WASHINGTON, …
Read morePublished August 18, 2022 by NORD
NORD’s annual rare disease conference on October 17 and 18 in Washington, DC will showcase two days of insightful speakers, discussions, and in-person connection WASHINGTON, DC, August 18, 2022 – The …
Read morePublished August 12, 2022 by NORD
Washington, DC, August 12, 2022 – Following the passage of the Inflation Reduction Act, Peter L. Saltonstall, President and CEO, the National Organization for Rare Disorders (NORD), issued the following …
Continue reading “NORD Statement on Passage of the Inflation Reduction Act”
Read morePublished August 3, 2022 by NORD
Wasilla, Alaska, August 3, 2022—All Things Kabuki and the National Organization for Rare Disorders, Inc. have launched a study with global reach to research Kabuki syndrome, which causes a variety …
Continue reading “All Things Kabuki and NORD® Launch Natural History Study of Kabuki Syndrome”
Read morePublished July 6, 2022 by NORD
Washington, DC, July 6, 2022 – NORD was founded in 1983 with the mission of improving the lives of people living with rare diseases by expanding their access to critical and timely …
Continue reading “NORD Statement on Dobbs v. Jackson”
Read morePublished June 30, 2022 by NORD
NORD’s patient centric conference showcased inspiring individuals, expert resources and presentations, and a festive celebration at the Rock and Roll Hall of Fame Cleveland, OH, June 29, 2022 – This …
Read morePublished June 9, 2022 by NORD
New RDAC will help educate the public, medical professionals, and government officials about rare diseases and identify solutions to improves the lives of those living with rare diseases June 9, …
Continue reading “Colorado Becomes 24th State to Establish a Rare Disease Advisory Council”
Read morePublished June 9, 2022 by NORD
WASHINGTON, June 8, 2022—Today, the U.S. House of Representatives passed by a vote of 392-28 the Food and Drug Amendments of 2022 (H.R. 7667), legislation with significant implications for millions …
Continue reading “NORD Applauds House Passage of H.R. 7667, the Food and Drug Amendments of 2022”
Read more
Your gift today fuels progress in the lab, in clinics, on Capitol Hill and for rare families who can’t wait another year for answers.
Please complete this form to access the requested resource.