Home / Rare Disease News / Partnerships / RDCA-DAP

Rare Disease News

Request for Applications: New Patient Registries Available to Join IAMRARE and RDCA-DAP

Published November 18, 2024 by NORD

Categorized in -

The National Organization for Rare Disorders (NORD®) announces a request for applications for the implementation of two new patient registries on the IAMRARE® platform. Funding is made available through the …

Continue reading “Request for Applications: New Patient Registries Available to Join IAMRARE and RDCA-DAP”

Read more

Rare Disease Workshop Highlights the Importance of Data Sharing in Drug Development 

Published September 15, 2022 by NORD

Categorized in -

C-Path, NORD and FDA hosted an annual workshop September 13-14 to spotlight the impact of their innovative data and analytics platform on rare disease drug development  TUCSON, Ariz. and WASHINGTON, …

Continue reading “Rare Disease Workshop Highlights the Importance of Data Sharing in Drug Development “

Read more

Upcoming Rare Disease Workshop Focuses on the Importance of Data Sharing in Drug Development

Published August 25, 2022 by NORD

Categorized in -

C-Path, NORD and FDA to host annual workshop September 13-14 to highlight the impact of their innovative data and analytics platform on rare disease drug development  TUCSON, Ariz. and WASHINGTON, …

Continue reading “Upcoming Rare Disease Workshop Focuses on the Importance of Data Sharing in Drug Development”

Read more
Sign Up for NORD News

Access State Report Card Data

Please complete this form to access the requested resource.

Please consider sharing some basic information with us.

Name(Required)
Consent(Required)
This field is hidden when viewing the form