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November 15, 2015

TOPIC: Patient Stories

Living Bella Soul

Posted at November 11, 2015 04:53 pm by Lisa Sencen

As Shannon tells her story, she starts with “we.” Shannon was born with a twin sister, Lauryn, who at twenty days of age contracted meningitis and was later diagnosed with cerebral palsy. She spent countless hours in the hospital alongside her sister, as she fought against the complications that arise with cerebral palsy. When Lauren passed at the age… Read More

November 9, 2015

TOPIC: Featured News, Patient Stories, Get Involved

Giving Spotlight: Parents Thank NORD for Saving Daughter’s Life

Posted at November 11, 2015 02:21 pm by Jennifer Huron

Laurie and Chuck Eallonardo were thrilled at the birth of their twins, Jenna and Caden. Laurie felt happy and relieved that she had been able to carry them for 38 weeks, almost to full term, which can be harder with twins.

Caden & Jenna born 01-10-08 Jenna and her… Read More

November 5, 2015

TOPIC: Patient Stories

Life with CGD

Posted at November 11, 2015 04:44 pm by Lisa Sencen

In April 2013, the Cooley family welcomed their second child, Sean Ryan. After some problems regarding his weight during the pregnancy, the Cooley’s were thrilled when their healthy baby boy was delivered. At two-and-a-half months old, the Cooley’s were worried that Sean was having stomach issues, but when they saw the results of X-rays done on him, it was… Read More

November 3, 2015

TOPIC: Patient Stories

Living with Seizure Disorder

Posted at November 11, 2015 04:06 pm by Lisa Sencen

In July of 1999, Andrew Ablondi was born to two loving and excited first-time parents. Although the pregnancy was uneventful, the delivery was long and Andrew arrived with a misshapen head, a swollen and bruised face, and he struggled to breathe. On his second day, Rachel, Andrew’s mother, had trouble feeding. As soon as she called the nurses in… Read More

October 29, 2015

TOPIC: Featured News, Patient Stories

Giving Spotlight: HomeServe USA Leadership and Employees Donate More Than $26,000 to NORD

Posted at October 10, 2015 04:56 pm by Jennifer Huron

“We are proud to support the efforts of important organizations like NORD, and to have an employee base so willing to give to the communities and charities that matter to them most.” –Tom Rusin, CEO of HomeServe USA

Earlier this month, HomeServe USA announced a donation of over $26,000 to the National Organization for Rare Disorders (NORD).  This extraordinary… Read More