On January 22, NORD’s Rare Caregiver Respite Program was featured in an article by BioNews Service writer Mary Chapman detailing the program’s offerings. It has run in the following patient-focused …
At the Head of the Herd is… Lanie Etkind, Executive Director, Familial Dysautonomia Foundation Lanie advocates for those affected by… familial dysautonomia (FD) Lanie is located in… New York, NY …
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