At the Head of the Herd is… Lanie Etkind, Executive Director, Familial Dysautonomia Foundation Lanie advocates for those affected by… familial dysautonomia (FD) Lanie is located in… New York, NY …
Patient Empowerment Network recently interviewed Rare Action Network Volunteer State Ambassador for Illinois Maria Bellefeuille on being both a rare disease patient and advocate. Maria will be speaking at this …
