Published October 23, 2020 by NORD
At the Head of the Herd is… Lanie Etkind, Executive Director, Familial Dysautonomia Foundation Lanie advocates for those affected by… familial dysautonomia (FD) Lanie is located in… New York, NY …
Read morePublished July 14, 2020 by NORD
Patient Empowerment Network recently interviewed Rare Action Network Volunteer State Ambassador for Illinois Maria Bellefeuille on being both a rare disease patient and advocate. Maria will be speaking at this …
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