The following statement was issued by Peter L. Saltonstall, President and CEO of the National Organization for Rare Disorders (NORD), on today’s announcement that Jonathan C. Goldsmith, MD, FACP, will …
Worldwide Syringomyelia & Chiari Task Force is located in Georgia and works to provide support and advocacy for those affected by Syringomyelia and Chiari.
The CdLS Foundation provides a host of services that educate and unite families touched by Cornelia de Lange Sydrome. Get the inside scoop about this organization by reading this Q&A.
American Multiple Endocrine Neoplasia Support (AMEN Support) is the NORD Membership Organization in the spotlight this week! Check out the Q&A we did with the organization!