Rare Disease News

Join NORD to Celebrate Rare Disease Day

Published February 16, 2015 by NORD

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In celebration of Rare Disease Day, NORD is excited to host a special event for the rare disease community that includes a screening of the new documentary, “Banner on the …

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Advancing Research: NORD Partners with Lundbeck for 6th Raise Your Hand Campaign

Published February 16, 2015 by NORD

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For the sixth year, we’re proudly partnering with the pharmaceutical company Lundbeck on the “Raise Your Hand to Fight Rare Diseases” campaign, which supports rare disease research in celebration of Rare Disease …

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Partnering with Hemophilia Federation of America for Rare Disease Day and Hemophilia Awareness Month

Published February 15, 2015 by NORD

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The bleeding disorders community will be recognizing Rare Disease Day on February 28, Hemophilia Awareness Month during the entire month of March, and World Hemophilia Day of April 17. These …

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Featured NORD Member Org: CTF

Published December 2, 2014 by NORD

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Learn more about Children’s Tumor Foundation, a NORD member organization making a big impact for Neurofibromatosis.

Rare Disease News

Join NORD to Celebrate Rare Disease Day

Advancing Research: NORD Partners with Lundbeck for 6th Raise Your Hand Campaign

Partnering with Hemophilia Federation of America for Rare Disease Day and Hemophilia Awareness Month

Featured NORD Member Org: CTF

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