As a lead up to #RareDiseaseDay, NORD’s Education Senior Advisor Mary Dunkle was interviewed live on WFAN Sports Radio’s “Bob Salter Show” on Sunday, February 23. The 40 minute interview touched on topics including rare disease facts, NORD’s history and mission, the significance of Rare Disease Day and the upcoming Rare Disease Day: Mission 2020 event at the International… Read More
December 6, 2019
Posted at December 12, 2019 08:33 am by Laura Mullen
Tell us a little bit about yourself! Where are you from?
My name is Viridiana Murillo, and I am from Pomona, California. I am a first-generation Mexican-American scientist and the first in my family to explore the field of genomics and data science. With six years of combined academic research and clinical lab experience, I have a… Read More
December 4, 2019
Posted at December 12, 2019 12:41 pm by Laura Mullen
BioNews Service reporter Larry Luxner attended the 2019 NORD Rare Diseases and Orphan Products Breakthrough Summit in Washington, DC in October, and has since written two articles based on Summit content.
Sickle Cell Disease News published the following article, centered on HHS Secretary Alex Azar’s Summit speech and comments regarding progress on the sickle cell disease front, on December… Read More
September 11, 2019
Posted at September 9, 2019 12:08 pm by Laura Mullen
NORD has released a statement on today’s House Committee on Oversight and Reform’s Subcommittee on Civil Rights and Civil Liberties hearing on the Administration’s recent revocation of medical deferred action policy and its potentially devastating impact on the rare disease community. The statement in its entirety can be read here.