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Still Rare After 50 Years: Andrea’s Rare Cancer Story

Published September 24, 2021 by NORD

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One month after his 35th birthday, my father, Kenneth, died of leiomyosarcoma (LMS). The journey was quick. He coughed up blood and it brought him into surgery. Massachusetts General Hospital diagnosed him, and he died in another hospital closer to my hometown five months …

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A Message to Chondrosarcoma Patients: Shayna’s Rare Cancer Story

Published September 17, 2021 by NORD

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Shayna had advanced metastatic chondrosarcoma, and her disease progression defied many expert opinions and expectations. In 2015, Shayna was misdiagnosed with scoliosis, and nine months elapsed before she was accurately diagnosed. She was prescribed physical therapy and exercises, which were …

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A Life Saving Reminder – Loren’s Rare Cancer Journey

Published August 27, 2021 by NORD

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In 2001, I was diagnosed with ocular melanoma. What makes ocular melanoma rare is that only 2,500 people are diagnosed with it each year. Following my diagnosis in October of 2001, I went through numerous tests at Sylvester Cancer Center. In November, I was admitted into the hospital where …

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