NORD Volunteer Information Session
In this session, NORD staff will provide an overview of NORD's volunteer programming. This is designed to give you a clear understanding of our mission and the various ways you …
In this session, NORD staff will provide an overview of NORD's volunteer programming. This is designed to give you a clear understanding of our mission and the various ways you …
Survivor Support Group – Monthly Virtual Meetings Dates: Third Saturday of each monthTime: 3:00 PM ETLocation: Online via ZoomRegistration: Register here The Raymond A. Wood Foundation's Survivor Support Group offers …
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Join NORD staff and community members for a night of FL based trivia at Gulf Stream Brewing in Fort Lauderdale, Florida! Our community meet up starts at 6 p.m.! This …
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The National Organization for Rare Disorders (NORD®) is proud to convene people living with a rare disease and their families through the Living Rare, Living Stronger® forum. This event is …
Pericarditis Alliance offers a once a month virtual support group for patients and their families to check in, connect and learn from each other. They invite speakers to talk …
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Pericarditis Alliance is so pleased to offer three new monthly virtual support groups for patients and their families to check in, connect, and learn from each other. Registration is open …
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Join the IPPF for the next virtual Mid-Atlantic Patient Support Group Meeting on December 9th to discuss "Nutrition and Autoimmune Bullous Disease" with Dr. Kyle Amber, Associate Professor of Dermatology; …
The SIAMG - Indo US Bridging RARE Summit 2026 brings together patients, researchers, clinicians, industry leaders, innovators, and advocates to strengthen collaboration and accelerate progress in rare disease research, diagnosis, …
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Survivor Support Group – Monthly Virtual Meetings Dates: Third Saturday of each monthTime: 3:00 PM ETLocation: Online via ZoomRegistration: Register here The Raymond A. Wood Foundation's Survivor Support Group offers …
Continue reading "🌟 Raymond A. Wood Foundation Survivor Support Group – Monthly Virtual Meetings"
Pericarditis Alliance offers a once a month virtual support group for patients and their families to check in, connect and learn from each other. They invite speakers to talk …
Continue reading "Pericarditis Alliance Virtual Support Group Every 1st Saturday"
Survivor Support Group – Monthly Virtual Meetings Dates: Third Saturday of each monthTime: 3:00 PM ETLocation: Online via ZoomRegistration: Register here The Raymond A. Wood Foundation's Survivor Support Group offers …
Continue reading "🌟 Raymond A. Wood Foundation Survivor Support Group – Monthly Virtual Meetings"
Moebius Syndrome Awareness Day is on January 24! Moebius syndrome is a rare, neurological condition that impacts 2 to 20 per million births. The Moebius Syndrome Foundation invites everyone to …
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