Name: 🌟 Raymond A. Wood Foundation Survivor Support Group – Monthly Virtual Meetings
Start: 2027-02-20T15:00:00-05:00
End: 2027-02-20T17:00:00-05:00

List
Month

November 2026
Cystinosis Research Network (CRN) Scientific Symposium: Advancing the Future of Cystinosis Care

November 13 @ 8:00 am - 6:00 pm EST

Cystinosis Research Network (CRN) Scientific Symposium: Advancing the Future of Cystinosis Care Date: November 13, 2026 8:00am - 6:00pm ET One day, in-person event Weber's Hotel 3050 Jackson Ave, Ann Arbor, MI 48103 Registration and details at https://cystinosis.org/event/2026symposium/ Questions? Email [email protected] The CRN Scientific Symposium is a one-day, peer-to-peer meeting bringing together physicians, clinicians, researchers, …

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MitoAction and The POLG Foundation POLG-Related Disorders. EL-PFDD Meeting

November 17

POLG EL-PFDD Meeting MitoAction and The POLG Foundation are proud to announce that they will co-host an Externally-Led Patient-Focused Drug Development (EL-PFDD) meeting focused on POLG-Related Disorders. The virtual meeting will be held on Tuesday, November 17, 2026, and is open to all members of the mitochondrial disease community, including patients, caregivers, clinicians, researchers, and …

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IndoUSRare – 12th Annual Conference of the Society for Mitochondrial Research and Medicine

November 19 - November 21

SMRM 2026 — 12th Annual Conference of the Society for Mitochondrial Research and Medicine Description: SMRM 2026 brings together clinicians, researchers, patient advocates, and rare disease experts to advance conversations around mitochondrial science, medicine, research, and patient care. In collaboration with IndoUSrare, the conference will provide a platform for knowledge sharing, scientific exchange, and collaboration …

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🌟 Raymond A. Wood Foundation Survivor Support Group – Monthly Virtual Meetings

November 21 @ 3:00 pm - 5:00 pm EST

Survivor Support Group – Monthly Virtual Meetings Dates: Third Saturday of each monthTime: 3:00 PM ETLocation: Online via ZoomRegistration: Register here The Raymond A. Wood Foundation's Survivor Support Group offers a monthly virtual gathering for adult survivors of hypothalamic-pituitary brain tumors. Moderated by brain tumor survivor Jason Burris, these sessions provide a safe space to …

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December 2026
Pericarditis Alliance Virtual Support Group Every 1st Saturday

December 5 @ 1:00 pm - 2:30 pm EST

Pericarditis Alliance offers a once a month virtual support group for patients and their families to check in, connect and learn from each other. They invite speakers to talk about topics such as adopting an anti-inflammatory diet and functional medicine. At the end of each meeting, they invite participants to join in a short …

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SIAMG – Indo US Bridging RARE Summit 2026

December 10 - December 13

The SIAMG - Indo US Bridging RARE Summit 2026 brings together patients, researchers, clinicians, industry leaders, innovators, and advocates to strengthen collaboration and accelerate progress in rare disease research, diagnosis, therapies, and patient care. The Summit will serve as a platform for cross-border knowledge exchange and meaningful partnerships across the rare disease community. Date: December …

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🌟 Raymond A. Wood Foundation Survivor Support Group – Monthly Virtual Meetings

December 19 @ 3:00 pm - 5:00 pm EST

Survivor Support Group – Monthly Virtual Meetings Dates: Third Saturday of each monthTime: 3:00 PM ETLocation: Online via ZoomRegistration: Register here The Raymond A. Wood Foundation's Survivor Support Group offers a monthly virtual gathering for adult survivors of hypothalamic-pituitary brain tumors. Moderated by brain tumor survivor Jason Burris, these sessions provide a safe space to …

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January 2027
Pericarditis Alliance Virtual Support Group Every 1st Saturday

January 2, 2027 @ 1:00 pm - 2:30 pm EST

Pericarditis Alliance offers a once a month virtual support group for patients and their families to check in, connect and learn from each other. They invite speakers to talk about topics such as adopting an anti-inflammatory diet and functional medicine. At the end of each meeting, they invite participants to join in a short …

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🌟 Raymond A. Wood Foundation Survivor Support Group – Monthly Virtual Meetings

January 16, 2027 @ 3:00 pm - 5:00 pm EST

Survivor Support Group – Monthly Virtual Meetings Dates: Third Saturday of each monthTime: 3:00 PM ETLocation: Online via ZoomRegistration: Register here The Raymond A. Wood Foundation's Survivor Support Group offers a monthly virtual gathering for adult survivors of hypothalamic-pituitary brain tumors. Moderated by brain tumor survivor Jason Burris, these sessions provide a safe space to …

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Moebius Syndrome Awareness Day

January 24, 2027 @ 8:00 am - 5:00 pm EST Jan 24 Moebius Syndrome Awareness Day

Moebius Syndrome Awareness Day is on January 24! Moebius syndrome is a rare, neurological condition that impacts 2 to 20 per million births. The Moebius Syndrome Foundation invites everyone to learn more about Moebius syndrome and the resources offered by the Moebius Syndrome Foundation at www.moebiussyndrome.org. It causes facial paralysis or weakness and can cause …

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February 2027
Pericarditis Alliance Virtual Support Group Every 1st Saturday

February 6, 2027 @ 1:00 pm - 2:30 pm EST

Pericarditis Alliance offers a once a month virtual support group for patients and their families to check in, connect and learn from each other. They invite speakers to talk about topics such as adopting an anti-inflammatory diet and functional medicine. At the end of each meeting, they invite participants to join in a short …

Continue reading "Pericarditis Alliance Virtual Support Group Every 1st Saturday"
🌟 Raymond A. Wood Foundation Survivor Support Group – Monthly Virtual Meetings

February 20, 2027 @ 3:00 pm - 5:00 pm EST

Survivor Support Group – Monthly Virtual Meetings Dates: Third Saturday of each monthTime: 3:00 PM ETLocation: Online via ZoomRegistration: Register here The Raymond A. Wood Foundation's Survivor Support Group offers a monthly virtual gathering for adult survivors of hypothalamic-pituitary brain tumors. Moderated by brain tumor survivor Jason Burris, these sessions provide a safe space to …

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November 2026

December 2026

January 2027

February 2027

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