The Wilson Disease Association cordially invites physicians attending The Liver Meeting® 2026 to join us for a complimentary Affiliate Event lunch: “Detecting Wilson Disease Early.” Enjoy lunch and networking with …
Join Mission MSA for their final Path to a Cure event of 2026! On Sunday, November 8 at 9:00am PT, the MSA community will come together in San Diego, California …
As the National Organization for Rare Disorders (NORD) looks to 2027, we invite residents of Wisconsin to join us for virtual community conversation to help shape rare disease public policy …
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As the National Organization for Rare Disorders (NORD) looks to 2027, we invite residents of Montana to join us for a virtual community conversation to help shape rare disease public …
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Cystinosis Research Network (CRN) Scientific Symposium: Advancing the Future of Cystinosis Care Date: November 13, 2026 8:00am - 6:00pm ET One day, in-person event Weber's Hotel 3050 Jackson Ave, Ann …
Join the IPPF for their next virtual Florida Patient Support Group on November 15th at 2pm EST. Living with pemphigus or pemphigoid is hard enough, but when you feel alone …
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POLG EL-PFDD Meeting MitoAction and The POLG Foundation are proud to announce that they will co-host an Externally-Led Patient-Focused Drug Development (EL-PFDD) meeting focused on POLG-Related Disorders. The virtual meeting …
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SMRM 2026 — 12th Annual Conference of the Society for Mitochondrial Research and Medicine Description: SMRM 2026 brings together clinicians, researchers, patient advocates, and rare disease experts to advance conversations …
In this session, NORD staff will provide an overview of NORD's volunteer programming. This is designed to give you a clear understanding of our mission and the various ways you …
Survivor Support Group – Monthly Virtual Meetings Dates: Third Saturday of each monthTime: 3:00 PM ETLocation: Online via ZoomRegistration: Register here The Raymond A. Wood Foundation's Survivor Support Group offers …
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Join NORD staff and community members for a night of FL based trivia at Gulf Stream Brewing in Fort Lauderdale, Florida! Our community meet up starts at 6 p.m.! This …
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The National Organization for Rare Disorders (NORD®) is proud to convene people living with a rare disease and their families through the Living Rare, Living Stronger® forum. This event is …
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