Discover What's Next for MS Care at CMSC 2025! Join them for four transformative days dedicated to innovations in multiple sclerosis (MS) care in beautiful Phoenix, Arizona! The CMSC Annual Meeting is perfect for both seasoned professionals and those who are new to MS care. 28-31 May 2025 Phoenix Arizona
You can find more information about IAC here. Recently, the IAC consortium voted to establish April 7, 2025, as International Adrenal Disease Awareness Day. The inaugural International Adrenal Disease Awareness Day on April 7 is now live! Please review the information on this newly created webpage and take a moment to watch this very short introductory …
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Annual Conference | Cholangiocarcinoma Foundation April 9-11, 2025 Salt Palace Convention Center 100 South West Temple Salt Lake City, Utah This event is a unique opportunity for patients and caregivers to sit side-by-side with experts in the field and provide their voices in helping focus research priorities. Together, patients, caregivers, advocates, doctors, researchers, and other experts …
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This event is a unique opportunity for patients and caregivers to sit side-by-side with experts in the field and provide their voices in helping focus research priorities. Together, patients, caregivers, advocates, doctors, researchers, and other experts worldwide will share knowledge, review the latest research, and agree on the most important areas to focus on. Patients …
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April is Epithelioid Hemangioendothelioma (EHE) Awareness Month The 2025 EHE 360 Global Patient Conference is coming up in April. Thursday, April 10th - Friday, April 11th 10 am - 1 pm ET, each day FREE and virtual Registration is required: https://fightehe.org/ehe-360/ Presented by The EHE Foundation, the EHE 360 Global Patient Conference is the largest gathering of …
The Texas Rare Action Network and Baylor College of Medicine/Texas Children's Hospital Genetics invites you to join patients, families, caregivers, and other rare disease community members at The Health Museum on April 12 from 11 a.m. to 2 p.m. for a family friendly event. Attendees will have the opportunity to meet other patients and caregivers, …
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Connect Virtually with pemphigus and pemphigoid Patients and Caregivers in the Pacific Northwest area on April 16th. You are not alone. Register: https://fundraise.pemphigus.org/groups_pnw_April_2025
Did you register to run on your own and want to join #Running4Rare? There's always room for more awesome people on the team! Email our NORD staff partner Jaime Pacheco [email protected] and she'll share more details about apparel. 6:40-7 a.m. Arrive at Boston Common- Boylston Street and Team meets right outside of the start corral. …
Monday, April 21, 2025 Cheer Section - Join the best and be the loudest with us!❤️ Wellesley, MA Mile 14.6 Cheer Section for the 2025 Boston Marathon Team 10 a.m.-3 p.m. (until the last runner on our team passes) Sign up here Location: Unitarian Universalist Society of Wellesley Hills 309 Washington Street in Wellesley, MA …
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Join NORD on Tuesday, April 22 from 9am to 4:30pm to advocate for legislation (HB 2457) that will establish a Rare Disease Advisory Council (RDAC). This is your chance to meet with legislators in-person in Salem and let them know an RDAC is needed in Oregon! Location: State Library of Oregon, 250 Winter St. NE, …
The Roll n' Stroll is a family-friendly event to raise awareness and funds for The LCC Foundation who support leukoencephalopathy with brain calcifications and cysts (LCC) patients and their families. April 26, 2025. Location: Duello Elementary Missouri or Virtual. Walk, roll, and rally for those living with LCC/Labrune Syndrome. Together, we’re moving toward hope, …
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