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Patient Stories

NORD Releases New Documentary called “Good Morning Peyton”

View the full documentary.

Danbury, C.T., October 26, 2017 – Imagine never being allowed to feel the sun on your skin. For 11-year-old Peyton, who is allergic to sunlight, that is… Read More

Beth Nguyen, R.N. – 2017 Rare Impact Award Honoree

2017 Honoree
Rare Impact Awards

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Beth Nguyen, R.N.

Mother, wife, nurse, patient, advocate, and leader; Beth Nguyen wears multiple hats, and not one loosely.

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Matthew Might, Ph.D. – 2017 Rare Impact Award Honoree

2017 Honoree
Rare Impact Awards

Matt Might

Matthew Might, Ph.D.

Ten years ago, Dr. Matthew Might was working in computer science and knew very little about the… Read More

Ellie McGinn – 2017 Rare Impact Award Honoree

2017 Honoree
Rare Impact Award

 

Ellie McGinn

Ellie McGinn

At only 9 years old, Ellie McGinn is driving research for a rare and fatal disease, has educated… Read More

Dr. Frederick Kaplan, M.D. – 2017 Rare Impact Award Honoree

2017 Honoree
Rare Impact Award

Dr. Frederick Kaplan

Frederick Kaplan, M.D.

Dr. Frederick Kaplan’s life changed the day he met a 2-year-old girl with fibrodysplasia ossificans progressiva… Read More