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Patient Stories

35 Ways and Growing: NORD’s Service to the Rare Disease Community

For 35 years, NORD has been leading the fight to improve the lives of patients and families with rare diseases. We do this by supporting patients and organizations, accelerating research, providing education, disseminating information,… Read More

Robert Campbell, Jr., M.D.: 2018 Lifetime Achievement Award Honoree

Dr. Robert M. Campbell, Jr. is Director of the… Read More

Estelle Benson, Founder of GBS|CIDP Foundation International: Abbey S. Meyers Leadership Award Honoree

Estelle Benson, founder of GBS\CIDP Foundation International, 2018 Abbey S. Meyers Leadership Award Honoree Estelle Benson, founder of GBS\CIDP Foundation International, 2018 Abbey S…. Read More

Richard Pazdur, M.D.: 2018 Public Health Leadership Award Honoree

Richard Pazdur, M.D. is the Director of the Food and Drug Administration’s Oncology Center of Excellence (OCE), which leverages the combined skills of the FDA’s regulatory scientists and reviewers with expertise in drugs, biologics… Read More

Patrick Dunegan: 2018 Rare Impact Award Honoree

Patrick Dunegan and his wife, Jennifer, met at church, spending time… Read More