What Is the NORD Rare Disease Database?
The NORD Rare Disease Database has over 1,300 reports on rare disorders. These reports provide detailed information about symptoms, causes, diagnosis, treatments, clinical trials, and support resources, including patient advocacy organizations. Each report includes references from textbooks, articles, websites, and government agencies.
NORD also provides many reports in Spanish, and additional translations can be requested by contacting us at [email protected].
What is a Rare Disease
A rare disorder is a condition that affects fewer than 200,000 Americans. There are over 10,000 rare diseases that together affect more than 30 million Americans. NORD is dedicated to the identification, treatment, and cure of these diseases through comprehensive education, advocacy, research, and service programs.
Additional Information & Support
While many rare conditions in our database have detailed reports, some do not have much detail yet. You can click on the disease name to find information about that condition from well-respected sources. Some of the information from these additional resources has technical language, so you may want to talk to your healthcare provider about it.
Need more help?
If you cannot find the information you need, our Information and Resource Services team is always available to help, and our team can be reached by phone at (800) 469-0283 or email: [email protected].
