Managing Your Disease

When you are navigating a rare disease, you need concrete help today and in the future. That’s why we are here.

Help Getting a Diagnosis

We help you get a diagnosis by connecting you with access to resources and also providing financial assistance for testing.

Getting Information

You can gain knowledge through our on-line Rare Disease Resource Center, which contains educational videos, free webinars, fact sheets, infographics, and other helpful materials. It is designed to help patients, caregivers, students, professionals, and the public.

Start using NORD’s Resource Library

Help Finding a Medical Expert

You can access a database of rare disease experts as well as primary physicians and other healthcare providers.

Search for a rare disease medical expert now

Help Finding a Clinical Trial

You can receive up-to-date information on clinical trials that NORD shares with patients and medical providers.

Explore clinical trials

Help Getting Patient Financial Assistance

You can find financial help with our Patient Assistance Program in areas such as obtaining medications and assisting with insurance premiums and co-pays.

Find a patient assistance program

Help Finding a Support Organization

You can find a patient group to help navigate your specific disease.

Search for a rare disease organization