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Running for Rare® Team

Through Running for Rare®, NORD’s signature charity running program, runners join together with community partners to raise awareness for rare diseases while fundraising to contribute to NORD programs for undiagnosed patients. This special team is made up of passionate and committed individuals seeking to make a meaningful difference for the rare disease community. The funds raised by runners will help NORD support undiagnosed patients through a variety of programs and services aimed at shortening the diagnostic odyssey.

When you join the Running for Rare Team, you are joining a group of individuals who are passionate and committed to an important cause.  This grassroots team of 4 grew to more than 100 runners in 2015, raising over $1,000,000 over the last 12 years.  As any past team member will tell you, being part of this team is a unique, life-changing experience.

The team is composed of dedicated runners from around the world who will not only spend their personal time training for the marathons, but also host numerous events to raise funds and engage people in the cause.

Runners interested in learning more can contact us at [email protected]