To Top

Running for Rare Team

Through Running for Rare, NORD’s signature charity marathon team, runners join together to raise awareness for rare diseases while fundraising to support undiagnosed patients. This special team is made up of passionate and committed individuals seeking to make a meaningful difference for the rare community.

The funds raised by the Running for Rare Team will support the NORD/Undiagnosed Diseases Network (UDN) Patient Assistance Program. This program provides financial assistance to families who have exhausted all other alternatives for seeking a diagnosis.  NORD will help cover the basic diagnostic testing needed for patients and families to apply into the Undiagnosed Diseases Network.

When you join the Running for Rare Team, you are joining a group of individuals who are passionate and committed to an important cause.  This grassroots team of 4 grew to more than 100 runners in 2015, raising over $1,000,000 over the last 12 years.  As any past team member will tell you, being part of this team is a unique, life-changing experience.

The team is composed of dedicated runners from around the world who will not only spend their personal time training for the marathons, but also host numerous events to raise funds and engage people in the cause.

Runners interested in learning more can contact us at [email protected]