Through Running for Rare, NORD’s signature charity marathon team, runners join together to raise awareness for rare diseases while fundraising to support undiagnosed patients. This special team is made up of passionate and committed individuals seeking to make a meaningful difference for the rare community.
The funds raised by the Running for Rare Team will support the NORD/Undiagnosed Diseases Network (UDN) Patient Assistance Program. This program provides financial assistance to families who have exhausted all other alternatives for seeking a diagnosis. NORD will help cover the basic diagnostic testing needed for patients and families to apply into the Undiagnosed Diseases Network.