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Jan. 18, 2016

TOPIC: Events, Featured News, Get Involved

Join the Running for Rare Team!

Posted by Christina Jensen
running4rare_NORD

For the ninth consecutive year, runners will join together to help raise awareness for rare diseases while fundraising to support the NORD Undiagnosed Diseases Network (UDN) Patient Assistance Program.

The 2016 team is looking for runners to join the Boston, Providence Marathon and half Marathon teams, as well as RARE Community Partners. When you join the Running for Rare Team, you are joining a group of people who are passionate and committed to an important cause that affects nearly every family in the U.S. In addition to fostering hope and support for the rare disease community, all of the funds raised support the NORD/UDN Patient Assistance Program.

Learn more about the program and read what participating runners and partners had to say here and check out the 2015 Marathon Slideshow below!

2015 Marathon Slideshow from David Parnes on Vimeo.

Call to Runners: Join the Team!

11174241_832671746812081_1668310083251474546_oBoston Marathon-April 18, 2016 

The BostonMarathon Team is looking for already registered runners who have a passion for rare disease awareness to join our team. To apply, please contact the Running for Rare Team Committee at runningteam@rarediseases.org. Applications are due by February 1st.

Providence Marathon and Half Marathon-May 1, 2016

To join the Providence Marathon and Half Marathon Team, please visit our website where you can find the runners application. Applications are due by February 29th.

NYC Marathon-November 6, 2016

The Running for Rare Diseases Team will be participating in the NYC Marathon for the first time! Applications will become available in Spring 2016.

Call to Patients, Families, and Runners: Become a RARE Community Patner!rarepartner

The hallmark of the Running for Rare team that sets it apart from other charity teams is our RARE Community Partners program. This program, which connects members of the rare disease community with our runners, creates a relationship that is mutually beneficial for both the runner and the partner. It gives the partners a platform to tell their story, raise awareness, find support and connect with those going through similar challenges. The team is looking for patients and families who are interested in working together to make a difference on behalf of all 7,000 diseases and the 30 million Americans impacted by them.

If you or someone you know is interested in becoming a RARE Community Partner please fill out this interest form by March 1, 2016.  A member of the Running for Rare Team will be in contact shortly.

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