TOPIC: Events
The complete agenda for the 2016 Rare Diseases & Orphan Products Breakthrough Summit is just around the corner! We’re excited to share with you all that we’ve been working on – here’s a sneak peek of what’s new and
TOPIC: Advocacy, Get Involved
NORD has recently become a member of a coalition of patient groups in Oregon seeking to reduce out-of-pocket drug costs for patients.
The Oregon legislature recently created a Prescription Drug Cost Working Group which will be meeting for the first time this month.
As part of its participation in this… Read More
TOPIC: Events, Get Involved
Join us in Hartford, Conn. on October 8th! For the first time, NORD’s charity marathon team, Running for Rare, will participate in the Eversource Hartford Marathon. We are thrilled to have the team running in the backyard of our Danbury, Conn., headquarters, and we look forward to recruiting local runners… Read More
TOPIC: Featured News, Get Involved
The strength of the rare disease community is defined by the people in it, and rare dads are some of our strongest advocates. You are always there to try and fix things, lend a helping hand, and you never stop supporting your families, whether you are a… Read More
TOPIC: Press Releases, Advocacy
NORD, the leading, independent advocacy organization committed to helping the 1 in 10 Americans with rare diseases, applauds the Senate for authorizing medical foods coverage in the National Defense Authorization Act for Fiscal Year 2017 (S.2943) on Tuesday. The bill now must be harmonized with the House version passed last month.
“This is an important step to receive… Read More
