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June 22, 2016

TOPIC: Advocacy, Get Involved

Rare Action Network: NORD and Patient Groups in Oregon Seek to Reduce Out-of-Pocket Drug Costs for Patients

Posted by Jennifer Huron


NORD has recently become a member of a coalition of patient groups in Oregon seeking to reduce out-of-pocket drug costs for patients.

The Oregon legislature recently created a Prescription Drug Cost Working Group which will be meeting for the first time this month.

As part of its participation in this… Read More

June 16, 2016

TOPIC: Press Releases, Advocacy

NORD Applauds Senate for Authorizing Medical Foods Coverage for the Military in National Defense Authorization Act (S.2943)

Posted by Jennifer Huron

NORD, the leading, independent advocacy organization committed to helping the 1 in 10 Americans with rare diseases, applauds the Senate for authorizing medical foods coverage in the National Defense Authorization Act for Fiscal Year 2017 (S.2943) on Tuesday.  The bill now must be harmonized with the House version passed last month.

“This is an important step to receive… Read More