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August 31, 2015

TOPIC: Featured News

Miss Connecticut Talks to NORD about Rare Diseases, the Miss America Pageant, and Voting for America’s Choice

Posted by Jennifer Huron

Miss Connecticut Colleen WardNext month, millions of Americans will tune in to watch the Miss America Pageant, airing live on ABC on September 13, 2015, from Atlantic City, New Jersey.  We were excited to speak with Miss Connecticut Colleen Ward, who will represent the State of Connecticut, where NORD’s headquarters… Read More

August 31, 2015


NTM Info & Research Inc.

Posted by Lisa Sencen

NTM Info & Research Inc.’s mission is to save and improve lives through research, education, early detection, and improved treatments for people with pulmonary nontuberculous mycobacterial (NTM) disease.

1.)   What does it mean to you personally to be a patient organization serving the rare community?

Our work means building awareness in the medical community, driving research forward and helping patients who face… Read More

August 26, 2015

TOPIC: Patient Stories

Giving Spotlight: Paula Mann Honors Son, Garrett, with Donation to NORD

Posted by Jennifer Huron
Garrett Mann

 “I really appreciate all that NORD does for those living and managing their lives with rare disorders.” -Paula Mann

Paula Mann is a mother of a boy, Garrett, born in 2008 with Mitochondrial Disease, a rare disease that can be present at birth or come on later in life.  He passed away in 2012.  “This was my and… Read More