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February 28, 2014

TOPIC: Featured News, Industry, Patients & Members

FDA Creates New Web-Based Educational Tool About the Agency

Posted by Mary Dunkle

The Food and Drug Administration’s Office of Orphan Products Development (OOPD), in collaboration with the FDA Center for Drug Evaluation and Research (CDER), has launched a web-based educational tool for rare disease patients, advocacy groups, researchers and industry on various FDA-related topics. Read More

February 3, 2014

TOPIC: Advocacy, Featured News, Patients & Members

Building on Policy Momentum

Posted by Paul Melmeyer

The rare disease community has seen several policy wins in the past few months, some of which may have gone unnoticed. First, in November, Congress passed the National Pediatric Research Network Act as part of the PREEMIE Reauthorization Act. President Obama signed the measure into law on November 27th. (more…)Read More

January 30, 2014

TOPIC: Featured News

Statement on Congressman Waxman’s Retirement

Posted by Peter L Saltonstall

The announcement by Congressman Henry A. Waxman that he will not seek re-election after this term has reminded all of us at NORD — and throughout the rare disease community — of how very much we honor and respect the numerous contributions of this brilliant and caring public official over his 40 years in office. Read More