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March 15, 2017

TOPIC: Medical, Advocacy, Patient Stories

Beth Nguyen, R.N. – 2017 Rare Impact Award Honoree

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2017 Honoree
Rare Impact Awards

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Beth Nguyen, R.N.

Mother, wife, nurse, patient, advocate, and leader; Beth Nguyen wears multiple hats, and not one loosely.

In 2007, before she began to experience health problems, Beth had a job she loved as an emergency room nurse and was highly-regarded by her… Read More

March 15, 2017

TOPIC: Medical, Advocacy, Patient Stories

Matthew Might, Ph.D. – 2017 Rare Impact Award Honoree

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2017 Honoree
Rare Impact Awards

Matt Might

Matthew Might, Ph.D.

Ten years ago, Dr. Matthew Might was working in computer science and knew very little about the world of rare diseases. Today, he runs his own rare disease research institute at the University of Alabama, serves as a White House strategist for… Read More

March 15, 2017

TOPIC: Medical, Advocacy, Patient Stories

Ellie McGinn – 2017 Rare Impact Award Honoree

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2017 Honoree
Rare Impact Award

 

Ellie McGinn

Ellie McGinn

At only 9 years old, Ellie McGinn is driving research for a rare and fatal disease, has educated nearly 1,000 future doctors, successfully advocated for the 21st Century Cures Act, and is helping other sick children across the globe… Read More

March 15, 2017

TOPIC: Medical, Advocacy, Patient Stories

Dr. Frederick Kaplan, M.D. – 2017 Rare Impact Award Honoree

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2017 Honoree
Rare Impact Award

Dr. Frederick Kaplan

Frederick Kaplan, M.D.

Dr. Frederick Kaplan’s life changed the day he met a 2-year-old girl with fibrodysplasia ossificans progressiva (FOP), a debilitating and progressive rare bone disorder.  In the three decades since, he has dedicated himself to FOP research and traveling the world to… Read More

March 15, 2017

TOPIC: Advocacy, Patient Stories

Brandon Hudgins – 2017 Rare Impact Award Honoree

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2017 Honoree
Rare Impact Award

Brandon Hudgins

Brandon Hudgins

For 20 years, Brandon Hudgins has chased his dreams of being an elite athlete and has put the demanding sport of competitive running at the center of his life.  Yet in September 2007, as a Division I college athlete attending Winthrop University, running… Read More