Nov. 26, 2021
TOPIC: Patients & Members
Posted by Rohan Narayanan
As we reach the holiday season, let us take time to celebrate and lift up the rare disease community. For this season of giving thanks, the National Organization for Rare Disorders (NORD) is sharing formerly exclusive, paid content from our 2021 virtual Living Rare, Living Stronger Patient and Family Forum. From engaging plenaries to breakout sessions to speakers from across the globe, the dynamic content from the conference is here to help you live your best rare life.
To give thanks and celebrate National Family Caregivers Month, today’s #NORDGivesBack content focuses on caregivers. Honor and support those spend significant amounts of time, attention, patience, and dedication caring for a loved one with this incredible new video resource.
Rare in the Family: Navigating the Roles of Patient, Parent and Caregiver
Dive into “Rare in the Family: Navigating the Roles of Patient, Parent and Caregiver” for a deep look at all the social and psychological needs of rare families that can be intensified when multiple family members are affected by a rare condition. Celebrate and explore the passions and identities of who we are and our many roles in life.
This year and every year, NORD has led the way in voicing the needs of the rare disease community, driving supportive policies, furthering education, advancing medical research, and providing patient and family services for those who need them most. One of the most remarkable things about the rare disease community is the universal commitment to making a positive impact for one another. Together, we can continue to help those affected by rare disorders live their fullest lives.
Connect with others and pass on these resources and your thanks this season. #NORDGivesBack
Access the full playlist on YouTube today. Subscribe to NORD’s channel to be alerted to new videos as soon as they are released.