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Dec. 4, 2019

TOPIC: Uncategorized

#NORDinthenews: NORD Summit content featured in two new articles

Posted by Laura Mullen

BioNews Service reporter Larry Luxner attended the 2019 NORD Rare Diseases and Orphan Products Breakthrough Summit in Washington, DC in October, and has since written two articles based on Summit content.

Sickle Cell Disease News published the following article, centered on HHS Secretary Alex Azar’s Summit speech and comments regarding progress on the sickle cell disease front, on December 3:

HHS Secretary Alex Azar Touts White House Efforts to Fight Sickle Cell Disease

 

Angelman Syndrome News published the following article, featuring Angelman advocate and Tennessee Rare Action Network Ambassador Terry Jo Bichell, on December 3:

Angelman Advocate Launches ‘Combined Brain’ Rare Disease Consortium