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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


5P-Society


Address

PO Box 268
Lakewood, CA 90714 USA

Phone

5628044506

Fax

5629205240

800 Number

8889700777

Email Address

director@fivepminus.org

Description

The 5P- Society is a nonprofit, 501(c)(3) organization dedicated to providing information and support to individuals with a deletion of the short arm (p) of chromosome 5 and their families. The 5p- Society promotes patient advocacy, engages in patient and professional education, and provides a variety of educational and support materials including a regular newsletter and brochures. 5p- syndrome is characterized by a distinctive, high-pitched, catlike cry in infancy, often with severe cognitive, speech, and motor difficulties that continue into adulthood.

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