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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Charcot-Marie-Tooth Association



Address

PO Box 105
Glenolden, PA 19036

Phone

6104999264

Fax

6104999267

800 Number

8006062682


Description

Charcot-Marie-Tooth Association (CMTA) is a 501(c)(3) national voluntary health organization that functions as an educational resource for people with Charcot-Marie-Tooth disease, their families, medical professionals, the educational community, and the general public. Charcot-Marie-Tooth disease is a genetic neurological disorder characterized by weakness and atrophy of muscles first in the legs and, later, in the arms and hands. Founded in 1983, the association acts as an advocate for people with Charcot-Marie-Tooth disease by raising awareness and encouraging public and private agencies and private industry to fund and support medical research. The association acts as a liaison between the research community and people with this disorder. It also organizes and encourages the formation of local chapters and support groups. The organization produces educational materials including brochures, a bi-monthly newsletter, a book on CMT and the CMT Facts series.

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