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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Cystic Fibrosis Foundation


Address

4550 Montgomery Ave
Suite 1100N
Bethesda, MD 20814

Phone

3019514422

Fax

3019516378

800 Number

8003444823

Email Address

info@cff.org

Description

The Cystic Fibrosis Foundation (CFF) is a voluntary, non-profit organization. Its mission is to assure the development of the means to cure and control cystic fibrosis (CF) and to improve the quality of life for those with the disease. CF is a genetic disease affecting approximately 30,000 children and adults in the United States. A defective gene causes the body to produce an abnormally thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections. These thick secretions also obstruct the pancreas, preventing digestive enzymes from reaching the intestines to help break down and absorb food. The mucus also can block the bile duct in the liver, eventually causing permanent liver damage in approximately six percent of people with CF. Established in 1955 and consisting of chapters and branch offices throughout the United States, the CF Foundation funds its own network of CF research centers at leading universities and medical schools.

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