Scroll
To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

*Important

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Cystic Fibrosis Trust


Address

11 London Rd
Bromley
Kent, BR1 1BY United Kingdom

Phone

2084647211

Fax

2083130472

800 Number

3003731000

Email Address

enquiries@cftrust.org.uk

Description

The Cystic fibrosis is the United Kingdom's most common, inherited, life-threatening disease. It affects more than 7,500 people in the UK, and one person in 25 carries the defective gene (more than 2.3 million carriers in the UK). Each week, five babies are born with CF and each week three young lives are lost. At present, there is no cure. The Cystic Fibrosis Trust funds medical and scientific research aimed at understanding, treating, and curing CF. It also aims to ensure that people with cystic fibrosis receive the best possible care and support in all aspects of their lives. Established in 1964, the Cystic Fibrosis Trust has approximately 16,000 members in 300 branches throughout the UK. The Cystic Fibrosis Trust provides a network of support groups for affected individuals and family members, and offers materials including information booklets, audiotapes, books, fact sheets, and video tapes, full details of which can be found on the organization's web site.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.