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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Cystic Fibrosis Trust


11 London Rd
Kent, BR1 1BY United Kingdom





800 Number


Email Address

[email protected]


The Cystic fibrosis is the United Kingdom's most common, inherited, life-threatening disease. It affects more than 7,500 people in the UK, and one person in 25 carries the defective gene (more than 2.3 million carriers in the UK). Each week, five babies are born with CF and each week three young lives are lost. At present, there is no cure. The Cystic Fibrosis Trust funds medical and scientific research aimed at understanding, treating, and curing CF. It also aims to ensure that people with cystic fibrosis receive the best possible care and support in all aspects of their lives. Established in 1964, the Cystic Fibrosis Trust has approximately 16,000 members in 300 branches throughout the UK. The Cystic Fibrosis Trust provides a network of support groups for affected individuals and family members, and offers materials including information booklets, audiotapes, books, fact sheets, and video tapes, full details of which can be found on the organization's web site.

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