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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Ectodermal Dysplasia Society


Address

Unit 1 Maida Vale Business Centre
Leckhampton
England, GL53 7ER United Kingdom

Phone

4401242261332

800 Number

4407805775703

Description

The Ectodermal Dysplasia Society (EDS) is a voluntary, non-profit organization whose mission is to provide information, advice and support to those affected by Ectodermal Dysplasia. The ED Society promotes the education of the medical profession and general public, supports research, produces regular newsletters, liaises with the Charity's Medical Advisory Board, supports members in negotiations for financial aid/other services, encourages a network for mutual support and maintains a website. Ectodermal Dysplasia (ED) is not a single disorder, but a group of closely related conditions of which more than 150 different syndromes have been identified. The Ectodermal Dysplasias (EDs) are genetic disorders affecting the development or function of the teeth, hair, nails and sweat glands. Depending on the particular syndrome, ED can also affect the skin, the lens or retina of the eye, parts of the inner ear, the development of fingers and toes, the nerves and other parts of the body.

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