National Foundation for Ectodermal Dysplasias

About National Foundation for Ectodermal Dysplasias

The National Foundation for Ectodermal Dysplasias (NFED) is the worldwide expert on ectodermal dysplasias and the only advocacy organization in the United States dedicated to those living with these disorders. Together, we enrich the lives of people affected by ectodermal dysplasias by fostering community, providing education and support, and driving advocacy and groundbreaking research—creating a brighter future for all. The NFED serves 11,100 affected individuals and their families in 120+ countries.

Related Rare Diseases:

• Split Hand/Split Foot Malformation
• Hallermann-Streiff Syndrome
• Pachyonychia Congenita
• Setleis Syndrome
• Johanson-Blizzard Syndrome
• Papillon Lefèvre Syndrome
• Fontaine Progeroid Syndrome
• Hypomelanosis of Ito
• Ectrodactyly Ectodermal Dysplasia Cleft Lip/Palate
• Focal Dermal Hypoplasia
• Oculo-Dento-Digital Dysplasia
• Ellis-Van Creveld Syndrome
• Dyskeratosis Congenita
• Keratitis Ichthyosis Deafness Syndrome
• AEC Syndrome
• Hypohidrotic Ectodermal Dysplasia
• Trichorhinophalangeal Syndrome Type I
• Rothmund-Thomson Syndrome
• Tooth and Nail Syndrome
• Oral-Facial-Digital Syndrome
• Incontinentia Pigmenti
• Tricho Dento Osseous Syndrome
• Coffin-Siris Syndrome
• Ectodermal Dysplasias
• Síndrome de Rothmund-Thomson
• Síndrome de Coffin Siris
• Síndrome orofaciodigital
• Malformación de mano dividida/pie dividido
• Síndrome de anquilobléfaron-displasia ectodérmica-fisura labiopalatina