To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Niemann-Pick Disease Group (UK)


Suite 2, Vermont House
Tyne and Wear, NE37 2SQ United Kingdom



Email Address

[email protected]


The Niemann-Pick Disease Group (UK) provides information and support to families affected by Niemann-Pick disease, a group of rare, inherited and metabolic disorders. Symptoms include yellow discoloration of the skin and eyes, progressive loss of motor skills, feeding difficulties, learning disabilities, and an abnormally enlarged liver or spleen. There are several different types of Niemann-Pick disease, and the NPDG provides information and support for all.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.