UNIQUE - Rare Chromosome Disorder Support Group - NORD (National Organization for Rare Disorders)

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UNIQUE – Rare Chromosome Disorder Support Group

Address

G1 The Stables
Station Road West
Oxted, RH8 9EE United Kingdom

Phone

0044 (0)1883 723356

Email Address

[email protected]

Website

http://www.rarechromo.org/html/home.asp

Description

The UNIQUE - The Rare Chromosome Disorder Support Group is a non-profit, voluntary organization dedicated to promoting awareness of rare chromosomal abnormalities. The organization was founded in 1984 and served as a source of support and information for anyone affected by any rare chromosome abnormality. UNIQUE acts as an international support group; produces a newsletter for registered members; and promotes awareness of rare chromosomal abnormalities, both among the public and relevant professionals. It maintains a database holding the karyotypes, phenotypes and natural histories of all affected members.

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