United Porphyrias Association

About United Porphyrias Association

United Porphyrias Association (UPA), a 501(c)3 non-profit patient advocacy group, was founded in January 2022 by a team of patient advocates, expert physicians, and researchers.

Related Rare Diseases:

• Acute Intermittent Porphyria
• ALAD Porphyria
• Erythropoietic Protoporphyria and X-Linked Protoporphyria
• Hepatoerythropoietic Porphyria
• Hereditary Coproporphyria
• Porphyrias
• Porphyria Cutanea Tarda
• Congenital Erythropoietic Porphyria
• Variegate Porphyria
• X-Linked Protoporphyria
• Porfirias