RareCare®

NORD’s Patient Assistance Programs


NORD Supports Rare Disease Patients Impacted by California Wildfires

If you or a loved one have a rare disorder and have been impacted by the LA fires, you may be eligible for relief through NORD’s Natural Disaster & Hurricane Emergency Relief Program. This relief may be used for:

  • Short-term emergency lodging
  • Limited home repairs
  • Auto repair or short-term car rental
  • Other needs considered on a case-by-case basis

Click here to apply for assistance or email [email protected].

For more information on NORD’s Natural Disaster & Hurricane Emergency Relief Patient Assistance Program, click here.

Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.

Morquio A Emergency Relief
Accepting Applications
Phone: 844-675-2354 Fax: 203-349-3200
Apply Online
Neurotrophic Keratitis Copay Assistance
Accepting new applications for current year
Phone: 855-567-3680 Fax: 203-349-3188
Resource(s): PAP_Copay_NK-July2024
Apply Online
PTC 124 GD-016-DMD Travel & Lodging Assistance (Duchenne Muscular Dystrophy)
Referral Required
Phone: 866-647-9325 Fax: 203-674-9937
Saol Pyruvate Dehydrogenase Deficiency Complex (PDCD) Travel & Lodging Assistance
Referral Required
Phone: 203-616-4324 Fax: 203-263-9928
Tuberous Sclerosis Complex (TSC) Bcureful Research Study Participation Travel & Lodging Assistance
Referral Required
Phone: 203-616-4320 Fax: 203-349-3199
Resource(s): TSC-Bcureful-ResearchStudyParticipation Travel Assistance (2)
Undiagnosed Disease Medical Assistance
Referral Required
Phone: 844-858-0451 Fax: 203-798-2289
Resource(s): FAQ Undiagnosed Patient Assistance Program 4-2019
Undiagnosed Diseases Copay Assistance
Referral Required
Phone: 844-858-0451 Fax: 203-798-2289
Resource(s): FAQ Undiagnosed Patient Assistance Program 4-2019
Urea Cycle Disorder Copay Assistance
Temporarily Waitlisting
Phone: 877-333-1860 Fax: 203-405-0802
Resource(s): UCD-PAP, UCD-PAP-Spanish
Urea Cycle Disorder Medical Assistance
Temporarily Waitlisting
Phone: 877-333-1860 Fax: 203-405-0802
Resource(s): UCD-PAP, UCD-PAP-Spanish
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