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Nov. 8, 2019

TOPIC: Patient Stories, Patients & Members

Rare Caregivers Corner: Cathy’s Respite Story

Posted by Laura Mullen

My husband and I got away for a whole week! We went to a resort where we could relax by the pool and catch up on much needed sleep. To know that we had a qualified CNA taking care of our little one was such a blessing. Family offers to help but it was SO important for me to have someone who knew how to handle any medical situation that might arise while we were gone.

Having the funds to pay someone was such an incredible blessing! The people at NORD understand how important it is to take care of the caretakers! We spend most of our extra resources finding ways to help our special needs daughter have a normal life. The funds from NORD gave us “permission” to have a “normal” weekend for us as a couple.

I have recommended NORD to several other special needs parents who have kids with rare disorders. It is such a great organization for us and has a ton of great resources!

To learn more about the NORD Rare Caregiver Respite Program and for information on how to apply, click here.