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Nov. 15, 2019

TOPIC: Patients & Members, Patient Stories

Rare Caregivers Corner: Q&A with Stephanie

Posted by Valaree DonFrancesco

NORD’s Rare Caregiver Respite Program provides eligible caregivers the opportunity to take a much-deserved break while knowing their loved one is being well cared for. Caregiver Stephanie recently answered a few quick questions about how she spent time away from caring for her daughter.

How did you use your respite?

Stephanie: I took a week away to have some mommy time.

What did it mean to you to receive this respite award?

Stephanie: It meant a lot to me! It gave me time to clear my mind from the everyday hustle and bustle of having a child with multiple disabilities.

To learn more about the NORD Rare Caregiver Respite Program and for information on how to apply, click here.