NORD’s Rare Giving Society recognizes the extraordinary generosity of individuals and family foundations who donate $1,000 or more to NORD annually. The generosity of these members enables NORD to improve the lives of those with rare disorders.

For the past 40 years, NORD has been at the heart of the rare disease community, working to drive public policy, accelerate research, and improve patient care. Looking forward, NORD is setting a bold agenda that builds on our history of serving the more than 25 million Americans living with rare diseases. Join our collaborative efforts to accelerate research, shorten the diagnostic odyssey, and improve care for people and families living with rare disorders.

All donations and matching gifts will count toward the annual membership in the Rare Giving Society. For more information about membership in NORD’s Rare Giving Society, please contact us.


In recognition of their annual support, members of the Rare Giving Society enjoy the following benefits at each designated membership level:

Rare Giving Society Member: $1,000 +

  • Gift recognition on NORD’s website and Annual Report.
  • Invitation to an exclusive annual giving impact call with Peter Saltonstall, President and CEO.
  • Early invitations to events and receptions.
  • Recognition at NORD events with a special nametag ribbon.

Rare Legacy Member: $10,000 +

  • Special NORD lapel pin and annual gift.
  • VIP seating at NORD’s annual Rare Impact Awards celebration.
  • Gift recognition through NORD’s website, eNews, social media channels, and Annual Report.
  • Invitation to an exclusive annual giving impact call with Peter Saltonstall, President and CEO.
  • Early invitations to events and receptions.
  • Recognition at NORD events with a special nametag ribbon

2022 Rare Giving Society Member: $1,000

  • Andrew LeGrand
  • Edward Patterson
  • Colin Blanch
  • Richard Leebove
  • David Piazza
  • Phil-Debbie Hoelscher
  • Donald Rissmiller
  • Vahe Zeroonian
  • The Raynie Foundation
  • The Roger Drake Charitable Fund
  • Anthony Hargrove
  • Rachael Larson
  • Salve Kutlow
  • Jamari Foundation
  • The de Rothschild Philanthropic Trust
  • Nicole Cohen- Ara D. Cohen Charitable Lead Trust
  • Mr. & Mrs. Randy Stilman
  • Susan Matthews
  • Florence Ferguson Shine
  • The Jewish Community Foundation of Los Angeles- Linda Manasee Charitable Fund
  • Beth Ann Beson
  • Cinnia Edwards
  • Erin Fitzgerald
  • Fred Krimm
  • John & Nellie Bastien Memorial Foundation
  • Larry & Marina Wray
  • Max and Selma Kupferberg Foundation
  • Spirit For Life Foundation
  • Susan Burns
  • Thomas & Sandra Sibley
  • Tim Trow
  • Toby Tschirhart
  • Worthington Olson

2022 Rare Legacy Member: $10,000

  • Alfred Selgas
  • Raymond Salza
  • Kay Family Foundation
  • Smidt Family Foundation Trust
  • Gregory & Carla Matthews
  • The Denise D’Ascenzo Foundation Inc
  • JF Maddox Foundation