NORD Rare Giving Society

NORD’s Rare Giving Society (RGS) recognizes the extraordinary generosity of individuals and family foundations who donate $1,000 or more to NORD’s Annual Fund in a given year, enabling our organization to improve the lives of those with rare disorders. For the past 40 years, NORD has been at the heart of the rare disease community, working to drive public policy, accelerate research, and improve patient care.

The Impact of Your Gift

Annual support from our donors creates a resounding impact on the lives of those living with rare diseases and their families. Your contributions to NORD help make the following possible:

• Increasing patient access to appropriate care and treatment
• Serving as the trusted source of information and resources for rare disease patients and caregivers along their journey
• Accelerating rare disease research
• Strengthening engagement and collaboration across the rare disease ecosystem through broader sharing of expert knowledge
• Advocating for policies that improve the health and well-being of individuals living with rare diseases and their families

Rare Giving Society Benefits

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NORD Rare Legacy Society

Our Board of Directors invites you to consider leaving a lasting impact on the rare disease community by including NORD in your estate plans. Individuals who have indicated NORD as a beneficiary in a bequest, charitable remainder trust, charitable lead trust, life insurance policy, or other planned giving vehicle,are included in NORD’s Rare Legacy Society (RLS). The RLS acknowledges the significant contributions of its members to the long-term health of our organization.

Legacy giving can also provide some significant estate tax benefits for you and your heirs!

The Impact of Your Legacy Gift

• Helps secure a sustainably funded future for NORD
• Buffers NORD against unexpected economic crises
• Enables NORD to be nimble and act on new opportunities
• Contributes to NORD’s capacity and longevity