NORD’s Rare Giving Society recognizes the extraordinary generosity of individuals and family foundations who donate $1,000 or more to NORD annually. The generosity of these members enables NORD to improve the lives of those with rare disorders.
For the past 40 years, NORD has been at the heart of the rare disease community, working to drive public policy, accelerate research, and improve patient care. Looking forward, NORD is setting a bold agenda that builds on our history of serving the more than 25 million Americans living with rare diseases. Join our collaborative efforts to accelerate research, shorten the diagnostic odyssey, and improve care for people and families living with rare disorders.
All donations and matching gifts will count toward the annual membership in the Rare Giving Society. For more information about membership in NORD’s Rare Giving Society, please contact us.
In recognition of their annual support, members of the Rare Giving Society enjoy the following benefits at each designated membership level:
Rare Giving Society Member: $1,000 +
- Gift recognition on NORD’s website and Annual Report.
- Invitation to an exclusive annual giving impact call with Peter Saltonstall, President and CEO.
- Early invitations to events and receptions.
- Recognition at NORD events with a special nametag ribbon.
Rare Legacy Member: $10,000 +
- Special NORD lapel pin and annual gift.
- VIP seating at NORD’s annual Rare Impact Awards celebration.
- Gift recognition through NORD’s website, eNews, social media channels, and Annual Report.
- Invitation to an exclusive annual giving impact call with Peter Saltonstall, President and CEO.
- Early invitations to events and receptions.
- Recognition at NORD events with a special nametag ribbon
2023 Rare Legacy Members: $10,000
- NECC Tort Trust
- Benefit Others Foundation
2023 Rare Giving Society Member: $1,000
- Michael Katcher
- William Papalitskas
- Mary Rowland
- Fariha Raza
- Peer Casillo
- Kay Holcombe
- Mary Frieze
- Parsifal Foundation
- Mr. & Mrs. Steven Keefer
- Heather Denny
- Kleban Family Foundation
- Leanne Priest
- Marco Cordes
- Dmitry Balyasny
- Zareen Taj Mirza
- Robert & Eleanor Demple Family Foundation
- Judy Feldman
- Stephen Skykes
- Juliane Nelson
- Michael Markowitz
- Griffiths Family
- David Beall
- The Hedstrom Family Charitable Trust
- Diane Miller
- David Langer
- Colleen Stilwill
- Kristin Morris
- The Harold Anfang Foundation Inc
- Town Fair Tire Foundation, Inc.
2022 Rare Giving Society
Click on the toggles below to view the 2023 Rare Giving Society Members
